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Newly Diagnosed?

The diagnosis of a blinding disease is often overwhelming. But if you or a loved one has been recently diagnosed with an inherited retinal disease or age-related macular degeneration (AMD), getting connected to the Foundation Fighting Blindness is a great way to get educated, better manage your condition, and find support.

Here are a few helpful steps.
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Share Your Vision

  • Homepage
  • Writing Your Story
  • Compilation of Written Stories
  • Jeff Riback sharing his #ShareYourVision about geographic atrophy/dry AMD.

    Jeff Riback

    Watch Jeff's Story
  • Adriann Keven with her white cane standing with a dog baseball mascot.

    Adriann Keve

    Watch Adriann's Story
  • Scott Schwartz, pictured on right, with his father in-law Evan Mittman, who is a Foundation Board Director.

    Scott Schwartz

    Read Scott's Story
  • Judy sharing her vision loss story.

    Judy

    Watch Judy's Story
  • Jim Shirk sitting in a brown leather chair sharing his vision loss story.

    Jim Shirk

    Watch Jim's Story
  • Rebecca Ashworth with figurines of Mickey and Minnie Mouse in the background on a shelf

    Rebecca Ashworth

    Watch Rebecca's Story
  • Paula Dubecky sitting in her sunroom

    Paula Dubecky

    Watch Paula's Story
  • Nevaeh Valverde in her bedroom sharing her vision loss story.

    Nevaeh Valverde

    Watch Nevaeh's Story
  • William sharing his story hold a sign with the words Share Your Vision.

    William

    Watch William's Story
  • Jeanetta Price holding a microphone wearing sunglasses and a blue gown.

    Jeanetta Price

    Watch Jeanetta's Story
  • October Blindness Awareness Month graphic with Foundation Fighting Blindness logo on the left and an image of Dan Day on the right.

    Dan Day

    Listen to Dan's Story
  • Brett Knight wearing a suit, standing in front of a tree looking to the side.

    Brett Knight

    Listen to Brett's Story
  • JJ Martinez sitting in her bedroom.

    JJ Martinez

    Watch JJ's Story
  • Stephanie Fineout is holding her white cane, wearing sunglasses and smiling at the camera.

    Stephanie Fineout

    Read Stephanie's Story
  • Martha Steel sharing her vision loss story.

    Martha Steel

    Watch Martha's Story
  • Steven Ringel with a backpack on, hiking through a valley with a blurred mountain in the background.

    Steven Ringel

    Read Steven's Story
  • Share Your Vision logo with illustration of an eye

    Vera Stratmann

    Read Vera's Story
Mike O'Brien with his wife, Drew, who is holding their daughter and Mike is holding their son.

Mike O'Brien

Watch Mike's Story
  • Dustin Buck with his wife and daughter in front of the Cinderella Castle in Disney World.

    Dustin Buck

    Watch Dustin's Story
  • Christine Exley with her husband and daughter.

    Christine Exley, PhD

    Read Christine's Story
  • Josh Steinberg looking to the side standing in a suit before his wedding.

    Josh Steinberg

    Read Josh's Story
  • Diana Hamilton-Rousseau looking at the camera while holding "Millie".

    Diana Hamilton-Rousseau

    Read Diana's Story
  • Evening photo of Marwa Ibrahim standing on a bridge overlooking the Seine River in Paris with the Eiffel Tower in the background.

    Marwa Ibrahim

    Read Marwa's Story
  • Michelle Glaze wearing a baseball hat and the ocean in the background.

    Michelle Glaze

    Listen to Michelle's Story
  • Share Your Vision Story: Van Duesterberg in a lab working with her blood sample

    Van Duesterberg

    Watch Van's Story
  • Share Your Vision Story: Charles Mason at home

    Charles Mason

    Watch Charles' Story
  • Lindsey Rambo with her sons

    Lindsey Roman

    Read Lindsey's Story
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Foundation Fighting Blindness homepage

The urgent mission of the Foundation Fighting Blindness is to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa, macular degeneration, Usher syndrome and the entire spectrum of retinal degenerative diseases. The Foundation is a beacon for those affected by these blinding diseases. Join the fight and help us accelerate our mission.

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Foundation Fighting Blindness

Phone: (800) 683-5555

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Donations can be mailed directly to:
Foundation Fighting Blindness, P.O. Box 45740, Baltimore, MD 21297-5740

Retinal Education

  • Information for Newly Diagnosed
  • An Eye on Education Video Series
  • Achromatopsia
  • Bardet-Biedl Syndrome
  • Best Disease
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