Provide Valuable Resources to Your Inherited Retinal Disease Patients
A diagnosis of an inherited retinal disease (IRD) can be challenging for both patients and their doctors. But the Foundation can help eye care professionals provide resources and information to enable patients to better understand and manage their conditions, and potentially qualify for clinical trials of emerging therapies.
No-Cost Genetic Testing
The Foundation’s best-in-class genetic testing program enables any eye care professional in the US to order no-cost genetic testing through the Foundation’s My Retina Tracker Program and genetic counseling for patients clinically diagnosed with an IRD.
The partnership includes genetic testing provided by Blueprint Genetics, which utilizes a state-of-the-art genetic testing panel for IRDs, and genetic counseling from InformedDNA, which are experts in helping patients understand what the test results mean for them and their families.
Also, patients can upload information about their condition to the My Retina Tracker Registry to get on the radar screen of researchers and therapy developers around the world, including those recruiting for clinical trials for emerging therapies.
Learn details about the Foundation’s My Retina Tracker Genetic Testing Program and Patient Registry.
Watch the Foundation’s Genetic Testing Program Webinar
Order Patient Information Materials for your Office
Please feel free to contact us for any additional information or materials you may want.
To order materials, send an e-mail to firstname.lastname@example.org or call 1-888-394-3937.
The Foundation’s Educational Resources for your Patients
The Foundation’s website provides comprehensive information about inherited retinal diseases and the latest news on clinical trials for emerging therapies.
The Foundation also holds a variety of in-person meetings and events (community-based, regional, national), as well online webinars and teleconferences to educate patients and families about their conditions and the research underway to save and restore vision.
Patients and families can sign-up to receive notifications of these events and research updates.
Getting connected with a Foundation chapter is a great way for patients and families to stay informed about ongoing research for treatments and meet other people and families affected by retinal degenerative diseases.
The Foundation maintains a network of 40 chapters around the U.S. and holds seminars and meetings that provide information on research, low vision resources, and other helpful topics.
Resources for Eye Care Professionals
Contact the Foundation to receive notification of our webinars for eye care professionals and the latest updates on research and resources for inherited retinal diseases.
Feel free to contact us with your questions about the latest research and clinical trials underway for your IRD patients.