Provide Valuable Resources to Your Inherited Retinal Disease Patients
A diagnosis of an inherited retinal disease (IRD) can be challenging for both patients and their doctors. But the Foundation can help eye care professionals provide resources and information to enable patients to better understand and manage their conditions, and potentially qualify for clinical trials of emerging therapies.
Continuing Education (CME/COPE)
Inherited Retinal Diseases Overview, Patient Resources and Clinical Trials
Upcoming CME/COPE Session - October 19, 2020
The Foundation Fighting Blindness, the world’s leading private funding source for retinal degenerative disease research, will host an online continuing medical education (CME and COPE) course on Monday, October 19, 2020 at 12:00 p.m. eastern time.
The continuing education course will review a number of topics related to care and management of patients with inherited retinal diseases (IRDs) including:
- recommended functional and structural tests,
- potential manageable complications,
- genetic testing and why it is a critical element in IRD care,
- clinical trials and additional resources.
The course will be delivered by Rachel Huckfeldt, MD, PhD, associate surgeon and director of inherited retinal degenerations fellowships at Massachusetts Eye and Ear Infirmary, and assistant professor of ophthalmology, Harvard Medical School.
Date: Monday, October 19, 2020
Time: 12:00 - 1:00 PM ET
Credits: 1.0 CME or COPE credit*
Registration: Inherited Retinal Diseases Overview, Patient Resources, and Clinical Trials
* All other clinicians will receive a Certificate of Attendance stating this activity was certified for AMA PRA Category 1 Credit™.
Previous CME/COPE Session - May 18, 2020
With dozens of clinical trials underway for the treatment of inherited retinal diseases, clinicians need to understand the actions they can take to better manage their IRD patients and get them on the path to clinical trials as well as future therapies. At the end of this CE activity, delivered by Jacque Duncan, MD, University of California, San Francisco participants should be able to:
- Summarize inherited retinal diseases (IRDs) and their impact on patients
- Identify the benefits of IRD genetic testing, genetic counseling, and patient registries
- Review current clinical trials for emerging IRD therapies
IRD Genetic Testing Webinar-Workshop for Eye Care Professionals
On June 4, 2020, the Foundation Fighting Blindness, with its partners Blueprint Genetics and InformedDNA, presented the following free genetic testing webinar-workshop for eye care professionals in the U.S. The presentation provides all professionals need to know to order no-cost genetic testing and counseling online through the Open Access Genetic Testing Program. The webinar includes a a review of all program features and the online ordering process.
No-Cost Genetic Testing
The Foundation’s best-in-class genetic testing program enables any eye care professional in the US to order no-cost genetic testing through the Foundation’s My Retina Tracker Program and genetic counseling for patients clinically diagnosed with an IRD.
The partnership includes genetic testing provided by Blueprint Genetics, which utilizes a state-of-the-art genetic testing panel for IRDs, and genetic counseling from InformedDNA, which are experts in helping patients understand what the test results mean for them and their families.
Also, patients can upload information about their condition to the My Retina Tracker Registry to get on the radar screen of researchers and therapy developers around the world, including those recruiting for clinical trials for emerging therapies.
Learn details about the Foundation’s My Retina Tracker Genetic Testing Program and Patient Registry.
Order Patient Information Materials for your Office
Please feel free to contact us for any additional information or materials you may want.
To order materials, send an e-mail to firstname.lastname@example.org or call 1-888-394-3937.
The Foundation’s Educational Resources for your Patients
The Foundation’s website provides comprehensive information about inherited retinal diseases and the latest news on clinical trials for emerging therapies.
The Foundation also holds a variety of in-person meetings and events (community-based, regional, national), as well online webinars and teleconferences to educate patients and families about their conditions and the research underway to save and restore vision.
Patients and families can sign-up to receive notifications of these events and research updates.
Getting connected with a Foundation chapter is a great way for patients and families to stay informed about ongoing research for treatments and meet other people and families affected by retinal degenerative diseases.
The Foundation maintains a network of 40 chapters around the U.S. and holds seminars and meetings that provide information on research, low vision resources, and other helpful topics.
Resources for Eye Care Professionals
Contact the Foundation to receive notification of our webinars for eye care professionals and the latest updates on research and resources for inherited retinal diseases.
Feel free to contact us with your questions about the latest research and clinical trials underway for your IRD patients.