Provide Valuable Resources to Your Inherited Retinal Disease Patients
The Foundation Fighting Blindness can help eye care professionals provide knowledge, community, and hope for patients with a retinal degenerative disease and their loved ones.
Checklist for creating a path forward:
- CONNECT your patient with the Foundation Fighting Blindness and refer them to a local Foundation Chapter to provide them with a network of other patients, educational opportunities and connect with a Peer Guide.
- OFFER them no-cost genetic testing and genetic counseling (for patients with an inherited retinal disease).
- RECOMMEND they participate in the My Retina Tracker Registry to learn more about ongoing research and clinicial trials.
- REFER your patient to a retinal specialist.
- SUGGEST local low vision and rehabilitation services.
- INFORM patients that there are dozens of clinical trials underway for emerging therapies.
Resources for eye care professionals:
- My Retina Tracker Program
- No-Cost Genetic Testing and Counseling
- My Retina Tracker Registry is a research database of people and families affected by rare inherited retinal degenerative diseases (IRD).
- Educational materials
- Educational webinars
- Continuing Medical Education (CME) courses
- Monthly Eye Care Professional Newsletter – sign-up by emailing po@fightingblindness.org
- Check out the clinical trial pipeline to see the more than 40 trials currently underway.
Resources for your patients with a retinal degenerative disease:
- Information for newly diagnosed patients and their loved ones
- Patient educational resources and literature
- Foundation Chapters
- Low vision and rehabilitation services
- Find a retina doctor
Information for professional outreach volunteers:
- Professional outreach video overview
- Educational materials
- Become a professional outreach volunteer by emailing po@fightingblindness.org
- Refer your eye care provider – submit the provider name, clinic, location, email (optional) to po@fightingblindness.org
As an eye care professional, you can provide knowledge, community and hope for your patients with a blinding retinal disease and the Foundation Fighting Blindness can help.
Contact our professional outreach team for more information:
Andrew Kim
Professional Outreach Coordinator
po@fightingblindness.org
Michelle Glaze
Director, Professional Outreach
MGlaze@FightingBlindess.org
251-654-9758
