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Inspirational Voices from the Fighting Blindness Community

Being diagnosed with anything can be hard, and you certainly will go through a range of emotions. You are not alone. Many have been in your shoes and have dealt with their diagnosis in different ways. Some feel a sense of relief when they can share their stories with others who are going through a similar situation.

The Foundation Fighting Blindness is a beacon for those affected by blinding retinal diseases. With our Beacon Stories, we share individual’s journeys with their disease and how their drive fuels them to pursue their passions. Not only do we find their stories aspirational, we believe these individuals are true beacons of strength, champions of courage, and advocates for hope. We hope these stories provide you with light that will get you through the darkness. Collectively, we are stronger together – as a community.

Do you have a story you'd like to share with the Fighting Blindness community? Let us know at



  • Apr 6, 2020 Beacon Stories

    Carolyn’s Beauty Within

    Carolyn is a business professional and beauty industry leader in Raleigh, North Carolina. In spite of her diagnosis with retinitis pigmentosa, Carolyn pursues exactly what she wants and knows what she is purposed to do in her life.

  • Mar 23, 2020 Beacon Stories

    No Limits for Determined Paralympian Triathlete

    Paralympian Elizabeth Baker says that Stargardt disease has made her a tougher person.

  • Mar 18, 2020 Beacon Stories

    Llura Ambler Gund

    February 14, 1941 – March 15, 2020

  • Mar 9, 2020 Beacon Stories

    No Slowing Down for LCA

    Braydon was diagnosed with an inherited retinal disease at only two years old. Eight years later, after his mom enrolled him in the My Retina Tracker® Program, Braydon learned his disease was LCA.

  • Feb 24, 2020 Beacon Stories

    Blind But Not Broken

    This is a father’s story on the night that changed his and his family’s life forever.

  • Feb 21, 2020 Legacy Supporter Stories

    Marie O'Leary

    “If someone like me, a woman with retinitis pigmentosa and a part-time job, can leave a legacy gift, you can too! And trust me, it feels really, really good to know that part of your life’s work will contribute to something meaningful for future generations.”

  • Feb 21, 2020 Legacy Supporter Stories

    Anne Vannice

    “I decided to include the Foundation in my estate plans,” Anne explained, “so that if the time ever comes when my grandchildren, or anyone else’s, experience vision loss, the scientists will have figured out how to help them.”

  • Feb 5, 2020 Beacon Stories

    Al Linde “Keeps on Rolling” with Macular Degeneration

    Al Linde has learned to “just roll with it” throughout his life to overcome many challenges.

  • Jan 13, 2020 Beacon Stories

    Charlie Kramer: Singing in the Dark

    26-year-old Charlie Kramer is well-known as a professional song leader, songwriter and spiritual leader. But until recently, Charlie didn’t want to openly share his journey with vision loss.

  • Dec 17, 2019 Beacon Stories

    Ashlyn Experiences Joy in Day-To-Day Life After Sight Is Restored

    Ashlyn’s vision was restored following her treatment with the LUXTURNA gene therapy.