Inspirational Voices from the Fighting Blindness Community

Being diagnosed with anything can be hard, and you certainly will go through a range of emotions. You are not alone. Many have been in your shoes and have dealt with their diagnosis in different ways. Some feel a sense of relief when they can share their stories with others who are going through a similar situation.

The Foundation Fighting Blindness is a beacon for those affected by blinding retinal diseases. With our Beacon Stories, we share individual’s journeys with their disease and how their drive fuels them to pursue their passions. Not only do we find their stories aspirational, we believe these individuals are true beacons of strength, champions of courage, and advocates for hope. We hope these stories provide you with light that will get you through the darkness. Collectively, we are stronger together – as a community.

Do you have a story you'd like to share with the Fighting Blindness community? Let us know at Marketing@FightingBlindness.org.

Beacon Stories

  • Oct 7, 2024

    Soaring as a Visionary Leader at Southwest

    James Ashworth, Vice President of Customer Care at Southwest Airlines, has dedicated his career to the airline industry and his advocacy for the visually impaired, driven by his personal experience with rod-cone dystrophy. His leadership and commitment to supporting the blind and visually impaired community have led to significant contributions, including employment initiatives and technological advancements to aid those with vision loss.

    Beacon Stories
  • Sep 9, 2024

    Perseverance of a Six-Time Paralympian

    As a six-time goalball Paralympian, Lisa has turned her progressive vision loss into a powerful source of strength and inspiration. Through her incredible journey—overcoming barriers, achieving five Paralympic medals, and becoming a passionate disabilities advocate—Lisa exemplifies how embracing life’s challenges can lead to extraordinary success and personal growth.

    Beacon Stories
  • Aug 26, 2024

    Lead With Luna: Meredyth’s Journey With Her Guide Dog

    In honor of National Dog Day, we’re celebrating the work of guide dogs and raising awareness about the importance of guide dog services by sharing Meredyth’s story. Her guide dog, Luna, has greatly improved her independence and quality of life, showcasing the significant benefits of guide dog services for those who are blind or have low vision.

    Beacon Stories
  • Aug 6, 2024

    A Para Triathlete's Journey With Stargardt

    This exclusive Beacon Story podcast features WROC’s Adam Chodak and professional Para triathlete Deb Chucoski as they discuss living with Stargardt disease and the amazing achievements of those who refuse to let it define them.

    Beacon Stories
  • Aug 5, 2024

    Life Through Mav’s Eyes

    Maverick, a determined and adventurous 10-year-old, was diagnosed with X-linked retinoschisis (XLRS) at age six, which led his family to find support and resources through the Foundation Fighting Blindness. Since his diagnosis, Mav continues to pursue his passions in sports and outdoor activities, inspiring his family with his resilience and positive attitude.

    Beacon Stories
  • Jul 29, 2024

    Woodburning Gives DeafBlind Artist Purpose

    Krista Webb has embraced woodburning as a creative outlet to cope with her progressive vision loss due to Usher syndrome. And Krista has built a supportive community on Instagram, where she shares her art and advocates for the blindness community.

    Beacon Stories
  • Jul 8, 2024

    Barry Smith and Emily Harding Smith

    “I have spent a lifetime attempting to prove what I can do, which has allowed Emily and I to be in a place where we can help. Please consider joining us.“

    Beacon Stories
  • Jul 8, 2024

    A Vision of Hope and Light: Fai and Patrick’s Journey with the Foundation Fighting Blindness

    “Legacy giving is about carrying the torch for future generations,” Fai shares. “It’s about ensuring that one day, we can all celebrate victories over vision loss together.”

    Beacon Stories
  • Jul 8, 2024

    Blind Guy Biking: Enduring the Trails for Stargardt

    Chris Smith, a mountain bike enthusiast who was diagnosed with Stargardt disease, transformed his bike into a lifeline after losing his driver’s license. Now, 15 years later, he’s tackling the grueling 2,745-mile Tour Divide race while raising funds for the Foundation Fighting Blindness.

    Beacon Stories
  • Jun 24, 2024

    Capturing Life Through A Deaf-Blind Lens

    Brian Bossert has turned his passion for photography into a successful career. As a commercial photographer and videographer living with Usher syndrome, Brian has a unique perspective and is using his creativity to inspire others as he shares his vision through photos and videos.

    Beacon Stories