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Inspirational Voices from the Fighting Blindness Community
Being diagnosed with anything can be hard, and you certainly will go through a range of emotions. You are not alone. Many have been in your shoes and have dealt with their diagnosis in different ways. Some feel a sense of relief when they can share their stories with others who are going through a similar situation.
The Foundation Fighting Blindness is a beacon for those affected by blinding retinal diseases. With our Beacon Stories, we share individual’s journeys with their disease and how their drive fuels them to pursue their passions. Not only do we find their stories aspirational, we believe these individuals are true beacons of strength, champions of courage, and advocates for hope. We hope these stories provide you with light that will get you through the darkness. Collectively, we are stronger together – as a community.
Do you have a story you'd like to share with the Fighting Blindness community? Let us know at marketing@fightingblindness.org.
Resources
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Visionary Artist Elijah Overcomes All Obstacles
Elijah has always had an artist mind, and he hasn’t let his diagnosis with Stargardt disease hold him back from his passion for creating art.
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Rachel Wants to Raise White Cane Awareness
Rachel Luehrs describes her journey of acceptance.
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The Bergstein’s Are Striking Out Blindness
The Bergstein family has always been passionate about helping the Foundation Fighting Blindness.
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The Show Must Go on Despite Vision Loss Due to Stargardts
Emmy Award-Winning Writer and Performer Ellen Gould Weaves her Personal Experience with Stargardts Into Her New Musical, “Seeing Stars”
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Shawn was diagnosed with Usher syndrome at a young age. Shawn now stays involved with the blind community and participates in his local blind hockey league. In his own words, he shares his journey at the Toyota-USA Hockey Disabled Hockey Festival.
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How Davida Regained Her Speed with Guide Dog Chubb
In honor of National Guide Dog Month this September, Davida is sharing her experience with the Guide Dog Foundation for the Blind and how she found a perfect match in her new guide dog, Chubb.
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Jen Walker was diagnosed with retinitis pigmentosa at 14 years old and didn’t feel ready to meet others with retinal diseases until many years later. Jen now wants to connect with others and raise awareness for the fighting blindness community.
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Hannah Dreams Big Despite Vision Loss
Hannah has always had dreams of starting her own fashion line. And despite being diagnosed with retinitis pigmentosa at the age of 15, she recently began an intimate company, Watson & Wilma.
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13 year old Kailey Reichardt’s personal essay about her little sister Ashlyn, who was diagnosed with Leber congenital amarosis (LCA) at a young age. Kailey is a Beacon for other siblings impacted and going through similar situations.
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Susan, who has retinitis pigmentosa, went through many tests in search of learning more about her eye disease. Once she enrolled in the My Retina Tracker® (MRT) testing program, Susan was provided with comprehensive results and a clear diagnosis, giving her clarity and hope.
