Inspirational Voices from the Fighting Blindness Community

Being diagnosed with anything can be hard, and you certainly will go through a range of emotions. You are not alone. Many have been in your shoes and have dealt with their diagnosis in different ways. Some feel a sense of relief when they can share their stories with others who are going through a similar situation.

The Foundation Fighting Blindness is a beacon for those affected by blinding retinal diseases. With our Beacon Stories, we share individual’s journeys with their disease and how their drive fuels them to pursue their passions. Not only do we find their stories aspirational, we believe these individuals are true beacons of strength, champions of courage, and advocates for hope. We hope these stories provide you with light that will get you through the darkness. Collectively, we are stronger together – as a community.

Do you have a story you'd like to share with the Fighting Blindness community? Let us know at

Beacon Stories

  • Sep 28, 2020 Beacon Stories

    Blind YouTuber Finding His Spot in Life

    YouTuber Sam Seavey was diagnosed with Stargardt disease when he was just 11 years old. Sam didn’t fully accept his visual impairments until his early 30s. Now he’s helping others through “The Blind Life,” which is currently the most extensive resource for assistive technology on the internet.

  • Sep 14, 2020 Beacon Stories

    Geo, a Four-Legged Wonder

    Michael was matched with his first guide dog, Geo, a yellow Labrador retriever, in March 2020, two years after he applied with Guiding Eyes for the Blind. Michael and Geo now have a relationship unlike any other.

  • Aug 3, 2020 Beacon Stories

    The Beauty in Embracing Yourself

    Award-nominated recording artist Lachi has collaborated with some of the biggest names in the industry with millions of streams on her music. But with all her many amazing musical accomplishments, it wasn’t until a few years ago that she fully embraced herself as a legally blind artist who identifies with the disability community as closely as she does with music.

  • Jul 20, 2020 Beacon Stories

    “The Only Disability is a Bad Attitude”

    Born with LCA, Anthony began wrestling in the seventh grade, continued through high school, and eventually became the subject of a documentary about his life as a blind wrestler. He then received a life-changing call from the United States Olympics Committee, asking him to compete on the Paralympic Judo Team.

  • Jul 6, 2020 Beacon Stories

    Rocketing to Success

    Tracy was the fourth generation of his family to receive the diagnosis of retinitis pigmentosa, but he never let that stop him from dreaming big. Tracy has worked at NASA’s Johnson Space Center for over 36 years, making significant contributions over the many years.

  • Jun 15, 2020 Beacon Stories

    Jumping into an Uncharted Arena

    Thirty-one-year-old Wren Blae Zimmerman always loved horses. But it wasn’t until a few years ago that Wren finally learned to ride. Now her life revolves around this equestrian dream, and she’s given herself the title of the “Blind Show Jumper.”

  • May 27, 2020 Beacon Stories

    Lulie Gund: Beloved Philanthropist, Role Model and Confidant

    Llura Gund, often referred to as Lulie, was known for her infectious kind smile and love of life.

  • May 18, 2020 Beacon Stories

    An Artist, First and Foremost

    Allen has always wanted to be known as an artist, first and foremost. His photography hints at the ever-changing nature of people’s lives and their environment, much like his own progression with retinitis pigmentosa (RP).

  • Apr 20, 2020 Beacon Stories

    Coping with COVID-19: Welcome to the “New Normal”

    We checked in with a few of the Foundation’s volunteers to get their perspective on these unprecedented times.

  • Apr 6, 2020 Beacon Stories

    Carolyn’s Beauty Within

    Carolyn is a business professional and beauty industry leader in Raleigh, North Carolina. In spite of her diagnosis with retinitis pigmentosa, Carolyn pursues exactly what she wants and knows what she is purposed to do in her life.