Branded page

Inspirational Voices from the Fighting Blindness Community

Being diagnosed with anything can be hard, and you certainly will go through a range of emotions. You are not alone. Many have been in your shoes and have dealt with their diagnosis in different ways. Some feel a sense of relief when they can share their stories with others who are going through a similar situation.

The Foundation Fighting Blindness is a beacon for those affected by blinding retinal diseases. With our Beacon Stories, we share individual’s journeys with their disease and how their drive fuels them to pursue their passions. Not only do we find their stories aspirational, we believe these individuals are true beacons of strength, champions of courage, and advocates for hope. We hope these stories provide you with light that will get you through the darkness. Collectively, we are stronger together – as a community.

Do you have a story you'd like to share with the Fighting Blindness community? Let us know at



  • Jan 13, 2020 Beacon Stories

    Charlie Kramer: Singing in the Dark

    26-year-old Charlie Kramer is well-known as a professional song leader, songwriter and spiritual leader. But until recently, Charlie didn’t want to openly share his journey with vision loss.

  • Dec 17, 2019 Beacon Stories

    Ashlyn Experiences Joy in Day-To-Day Life After Sight Is Restored

    Ashlyn’s vision was restored following her treatment with the LUXTURNA gene therapy.

  • Nov 22, 2019 Beacon Stories

    A Renegade on a Mission

    Dr. Marciello doesn’t let a Stargardt disease diagnosis get in the way of his twin passions: medicine and baseball.

  • Oct 28, 2019 Beacon Stories

    Visionary Artist Elijah Overcomes All Obstacles

    Elijah has always had an artist mind, and he hasn’t let his diagnosis with Stargardt disease hold him back from his passion for creating art.

  • Oct 15, 2019 Beacon Stories

    Rachel Wants to Raise White Cane Awareness

    Rachel Luehrs describes her journey of acceptance.

  • Oct 11, 2019 DIY Campaign Success Stories

    The Bergstein’s Are Striking Out Blindness

    The Bergstein family has always been passionate about helping the Foundation Fighting Blindness.

  • Sep 30, 2019 Beacon Stories

    The Show Must Go on Despite Vision Loss Due to Stargardts

    Emmy Award-Winning Writer and Performer Ellen Gould Weaves her Personal Experience with Stargardts Into Her New Musical, “Seeing Stars”

  • Sep 20, 2019 Beacon Stories

    Blind Miracle on Ice

    Shawn was diagnosed with Usher syndrome at a young age. Shawn now stays involved with the blind community and participates in his local blind hockey league. In his own words, he shares his journey at the Toyota-USA Hockey Disabled Hockey Festival.

  • Sep 6, 2019 Beacon Stories

    How Davida Regained Her Speed with Guide Dog Chubb

    In honor of National Guide Dog Month this September, Davida is sharing her experience with the Guide Dog Foundation for the Blind and how she found a perfect match in her new guide dog, Chubb.

  • Aug 19, 2019 Beacon Stories

    Jen’s Journey with RP

    Jen Walker was diagnosed with retinitis pigmentosa at 14 years old and didn’t feel ready to meet others with retinal diseases until many years later. Jen now wants to connect with others and raise awareness for the fighting blindness community.