Newly diagnosed? Connect with the Foundation Fighting Blindness for education, managing your condition, and finding support.

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Newly Diagnosed?

The diagnosis of a blinding disease is often overwhelming. But if you or a loved one has been recently diagnosed with an inherited retinal disease or age-related macular degeneration (AMD), getting connected to the Foundation Fighting Blindness is a great way to get educated, better manage your condition, and find support.

Here are a few helpful steps.
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  • Resource Links
  • Understanding and Obtaining Social Security Disability Benefits
  • How To Qualify For Social Security Disability Benefits With Vision Loss
  • Do What You Want to Do; Be Who You Want to Be!
  • Why Science Is Closer Than You Think To Beating Blindness

American Printing House ConnectCenter

The APH ConnectCenter provides resources and information to people who are blind and low vision, their families and professionals in the field. To learn more, visit the ConnectCenter website.


Duke Eye Center: Vision Rehabilitation and Performance

The Duke Vision Rehabilitation and Performance Division at Duke Eye Center may be the best in the country, and one of only two in the southeast US. Led by Diane Whitaker, OD, Duke's state-of-the-art vision rehabilitation center and occupational therapy program helps patients with vision loss manage day-to-day activities with training, tools, and therapy. 

For more information, please visit the Duke Vision Rehabilitation and Performance Division website.


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Founded in 1920 by William Hadley, an educator who lost his eyesight later in life, Hadley offers practical help, connection and support free of charge to anyone with a visual impairment, their families and professionals supporting them. With Hadley, you can discover new ways to do things that have become more difficult due to vision loss and connect with a network of peers who "get it." And you don't need to come to Hadley. Hadley's help comes to you; online, on the phone or through the mail. To learn more, visit www.Hadley.edu or call 1-800-323-4238.


The Low Visions Shop logo

The Low Vision Shop is a one-stop-shop for all assistive devices for low vision and blindness, including the latest in wearable technology. We are proud to be the go-to source for best-in-class low vision and blind assistive devices online, in our physical stores in the Baltimore area, South Florida and New York, and with multiple B2B channels.

Our trained professionals help individuals explore the latest advancements in low vision technology to find the best solutions for their stage of sight loss. We nurture and engage with the sight-loss community through in-house and virtual events, videos, demos, webinars, sponsorships, and social media.


The following content is provided courtesy of our friends at:

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Understanding and Obtaining Social Security Disability Benefits

Play video:

May 26, 2020

How To Qualify For Social Security Disability Benefits With Vision Loss

A guide to receiving Social Security Disability Benefits if you have vision loss or are legally blind.

Living and Thriving

Do What You Want to Do; Be Who You Want to Be!

Play video:

Apr 10, 2020

Why Science Is Closer Than You Think To Beating Blindness

Using high-tech, camera-equipped eyeglasses and a healthy pair of eyes with 20/20 vision located hundreds, maybe even thousands, of miles away, a blind New York attorney has help to navigate the city’s busy streets and broken sidewalks.

The Foundation in the News
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Foundation Fighting Blindness homepage

The urgent mission of the Foundation Fighting Blindness is to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa, macular degeneration, Usher syndrome and the entire spectrum of retinal degenerative diseases. The Foundation is a beacon for those affected by these blinding diseases. Join the fight and help us accelerate our mission.

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Foundation Fighting Blindness

Phone: (800) 683-5555

6925 Oakland Mills Road, #701, Columbia, MD 21045.

Donations can be mailed directly to:
Foundation Fighting Blindness, P.O. Box 45740, Baltimore, MD 21297-5740

Retinal Education

  • Information for Newly Diagnosed
  • An Eye on Education Video Series
  • Achromatopsia
  • Bardet-Biedl Syndrome
  • Best Disease
  • Choroideremia
  • Leber Congenital Amaurosis
  • Macular Degeneration
  • PRPH2-Associated Disease
  • Retinitis Pigmentosa
  • Refsum Disease
  • Stargardt Disease
  • Usher Syndrome
  • X-Linked Retinoschisis (XLRS)
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© 2023 Foundation Fighting Blindness, All Rights Reserved. The Foundation Fighting Blindness is a qualified 501(c)(3) non-profit organization and all donations are tax deductible. EIN 23-7135845.