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Hello. My name is Marwa Ibrahim and I am 27 years old from Lebanon.
I was diagnosed with Stargardt disease at the age of 16. First it was really hard for me to understand that my life would be a bit different than normal teenagers. I can’t see everything normally. There were many obstacles I should understand that I can’t do. I can't drive, I can’t cross roads alone, can’t read or study normally. It was challenging for me to finish university with my case since I wasn't yet used to the new lifestyle I will be living through.
Okay, now it is still really hard for me to accept that I have a case different than others and I go through many difficult situations in my daily life.
My message for whoever is struggling with a rare disease — stay positive, stay happy. Think that the disease is the reason why you are special. Just like me. Even though I struggle from many situations, I feel my case made me special and Stargardt made me have star eyes.
The urgent mission of the Foundation Fighting Blindness is to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa, macular degeneration, Usher syndrome and the entire spectrum of retinal degenerative diseases. The Foundation is a beacon for those affected by these blinding diseases. Join the fight and help us accelerate our mission.
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