Recent Foundation News
-
Foundation Fighting Blindness Appoints Jason Morris as Board Chair
Foundation NewsLongtime Board member, parent advocate, and business executive slated to guide next phase of the organization’s growth and mission, effective immediately.
-
Foundation News
The event will feature presentations from leading experts in stem cell therapies, cellular imaging, and the latest clinical developments in the treatment of inherited retinal diseases and age-related macular degeneration.
-
Honoring Karen Petrou: A Visionary Leader and Champion for the Community
Foundation NewsRemembering Karen Petrou, whose strategic vision, personal courage, and unwavering commitment helped shape the future of inherited retinal disease research.
-
Foundation News
The May 14 event will convene leaders across industries to raise funds that advance treatments and cures for blinding diseases.
-
Recording Available: Insights Forum | Friday, December 12, 2025
Foundation NewsThe Foundation Fighting Blindness is pleased to provide a recording and full transcript of the Insights Forum, our quarterly conference call providing updates to the blinding diseases community. The call took place on December 12, 2025.
-
Foundation Fighting Blindness Provides Public Access to Data From its RUSH2A Natural History Study
Foundation NewsRUSH2A has captured extensive data over four years from patients with USH2A mutations causing non-syndromic retinitis pigmentosa and Usher syndrome type 2A.
-
Foundation News
The free, online event at 7 p.m. ET on Tuesday, November 11, 2025, will feature presentations from patient advocate Jessie Wolinsky, retina specialist Sandeep Grover, MD, and clinical psychologist Ann Wagner, PhD, LP, ABPP.
-
Foundation Fighting Blindness Celebrates Blindness Awareness Month with #ShareYourVision Campaign
Foundation NewsThis social media campaign amplifies authentic stories from the blind and low vision community to highlight the spectrum of vision loss experiences.
-
Agnes Gund – Renowned Philanthropist, Social Justice Champion, and Art Patron – Passes Away
Foundation NewsThe documentary “Aggie: An Incredible Story of Art and Justice” chronicles her story.
-
Give Kids a Chance: Reauthorizing a Lifeline for Children’s Vision
Advocacy Foundation NewsThe House Energy & Commerce Committee is considering H.R.1262, the Give Kids a Chance Act, which would reauthorize the Rare Pediatric Disease Priority Review Voucher (PRV) Program.
