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Genetic Testing Frequently Asked Questions
Landing PageA genetic diagnosis can provide many benefits to people with inherited retinal diseases including: clarification of a clinical diagnosis, determination of the disease inheritance pattern within the family, and identification of clinical trials and therapies that may be appropriate for the patient.
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Fighting RP on the Foundation’s Frontline
Beacon StoriesMichelle Glaze, the Foundation’s associate director of professional outreach, shared her personal story of being diagnosed with retinitis pigmentosa (RP) in the film ‘Decoding disease.‘ In her own words, Michelle also describes her journey with genetic testing and the Foundation Fighting Blindness’ impact on her life.
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Eye On the Cure Research News
The company is planning a late-stage trial for its achromatopsia (CNGB3) gene therapy.
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Press Releases
This June 30th exclusive conversation and acoustic performance by Grammy-nominated rocker Grace Potter will raise awareness and funds to find treatments and cures for blinding diseases.
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Blind YouTuber Finding His Spot in Life
Beacon StoriesYouTuber Sam Seavey was diagnosed with Stargardt disease when he was just 11 years old. Sam didn’t fully accept his visual impairments until his early 30s. Now he’s helping others through “The Blind Life,” which is currently the most extensive resource for assistive technology on the internet.
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Biogen’s Phase 3 Clinical Trial for its Choroideremia Gene Therapy Doesn’t Meet Endpoints
Eye On the Cure Research NewsAdditional results from the trial will be reported at a future scientific meeting
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Two Blind Brothers Hosts Foundation Fighting Blindness Virtual Gala "Night for Sight"
Press ReleasesThis virtual event on June 24, featuring entertainment from Sheryl Crow, will raise awareness and funds to find treatments and cures for blinding diseases.
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Landing Page
This pages contains a variety of webinars that have been shared on a national level.
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Beacon Stories
From stargazing to bird watching, Michael has been an enthusiast of all things science from the age of 12. When Michael was diagnosed with retinitis pigmentosa at 30 years old, he knew he wasn’t going to give up his dream of becoming a record-setting birder. In his own words, Michael shares how he’s overcome his vision loss and continued to pursue his birding passions with “birding-by-ear.”
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Foundation Fighting Blindness to Host National Virtual VisionWalk
Press ReleasesThe Spring Virtual VisionWalk on June 12th will raise awareness and fund research finding treatments and cures for blinding retinal diseases.
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