Displaying 1–10 of 121 resources results
Mar 13, 2023
Blind Paralympian Reaching New Heights
Isaac Jean-Paul was diagnosed with X-linked juvenile retinoschisis (XLRS) at the age of two. Isaac was always set on being a professional athlete, and now he’s a Paralympian, winning bronze in the long jump in the 2020 Games and breaking the high jump world record three times.
Feb 27, 2023
Rewriting the Narrative as the First Black Deaf-Blind Journalist
Steven McCoy has made history as the first black deaf-blind journalist in the world, as he was recently diagnosed with Usher syndrome after a lifelong struggle with hearing loss. Equipped with a passion for storytelling and advocacy, he now uses his voice to create lasting change within the entertainment industry and deaf-blind community.
Feb 14, 2023
A Love Without Limits: How John and Min Conquer Blindness Together
In honor of Valentine’s Day, the Foundation Fighting Blindness brings you a special edition of our Beacon Story series, which covers the unique journey of visually impaired couple John and Min.
Jan 23, 2023
Birding Blind: Identifying Birds by Song
Martha Steele has been birding for over 30 years, but the way in which she birds has changed over time. Martha has Usher syndrome, with her central vision declining rapidly in the early 2000s and receiving her first cochlear implant in 2010. Now she birds entirely by ear and has learned the songs of about 150 bird species.
Jan 9, 2023
Retinal Research Community Loses Beloved Pioneer Sam Jacobson
His many contributions included pivotal work that led to LUXTURNA
Jan 9, 2023
Fearless Sister Duo Finding Hope
April LuFriu and Melissa Escobio are sisters and best friends who do just about everything together, including having retinitis pigmentosa (RP).
Dec 12, 2022
Resourceful Advocate for Research
Manorthia was diagnosed with retinitis pigmentosa (RP) when she was 22 years old but didn’t start experiencing considerable vision loss until years later. Once she began to notice her vision deteriorating more rapidly, she reached out to the Foundation Fighting Blindness to get involved with the blindness community.
Dec 2, 2022
Your Dollar Makes a Difference
At the Foundation Fighting Blindness, a dollar is more than just a dollar – it’s a path to transforming lives. But just where does your donation go?
Nov 14, 2022
Chloe’s Creative Journey with Vision Loss
Chloé Duplessis is a legally blind digital collage artist in Denver, Colorado. At 39 years old, Chloé was diagnosed with Stargardt disease, which was a pivotal point in her creative journey to becoming a full-time artist and owner of Duplessis Art.
Oct 24, 2022
Charlie Kramer: Life Coach for the Disabled
Retinitis pigmentosa (RP) runs in Charlie Kramer’s family, so it wasn’t a surprise when he was diagnosed at a young age. But now, at 29 years old, Charlie is following his passion for helping and empowering others as a full-time life coach for those with disabilities.