Displaying 1–10 of 28 resources results
Oct 16, 2018 Beacons of Hope
Kai Wang was 18 months old when he was diagnosed with the condition. His parents never imagined the extraordinary journey they would take with their son when they learned he had a condition that would render him blind.
Jul 27, 2018 Beacons of Hope
A story about living with retinitis pigmentosa.
Dec 17, 2017 Beacons of Hope
“I try not to get my hopes up too much, but I never lose hope; I’m determined. I just want to see my son’s face, see him get married, & see my grandchildren. I encourage everyone with a retinal disease to get a genetic test & to never ever give up hope.“
Oct 9, 2017 Beacons of Hope
Joe Caruso, founder of FOCUS Wine Foundation, knows life both with and without the ability to see. His first memory is sitting in the waiting room with his mother at the Scheie Eye Institute in Philadelphia.
Sep 20, 2017 Beacons of Hope
When you’re the catcher, the ball always comes to you. Heather Presnar wouldn’t have had it any other way.
Aug 7, 2017 Beacons of Hope
Christian Guardino has been singing for as long as he can remember; it’s the seeing that is something new.
Jul 29, 2016 Beacons of Hope
Artist Dana Simon describes her experience with My Retina Tracker, a free and secure online registry for people with inherited retinal diseases.
Jun 27, 2016 Beacons of Hope
May 9, 2016 Beacons of Hope
Apr 15, 2015 Beacons of Hope
An interview with Louis Posen, record label founder and retinitis pigmentosa patient.