Displaying 1–10 of 46 resources results
Jan 13, 2020 Beacon Stories
26-year-old Charlie Kramer is well-known as a professional song leader, songwriter and spiritual leader. But until recently, Charlie didn’t want to openly share his journey with vision loss.
Dec 17, 2019 Beacon Stories
Ashlyn’s vision was restored following her treatment with the LUXTURNA gene therapy.
Nov 22, 2019 Beacon Stories
Dr. Marciello doesn’t let a Stargardt disease diagnosis get in the way of his twin passions: medicine and baseball.
Oct 28, 2019 Beacon Stories
Elijah has always had an artist mind, and he hasn’t let his diagnosis with Stargardt disease hold him back from his passion for creating art.
Oct 15, 2019 Beacon Stories
Rachel Luehrs describes her journey of acceptance.
Oct 11, 2019 DIY Campaign Success Stories
The Bergstein family has always been passionate about helping the Foundation Fighting Blindness.
Sep 30, 2019 Beacon Stories
Emmy Award-Winning Writer and Performer Ellen Gould Weaves her Personal Experience with Stargardts Into Her New Musical, “Seeing Stars”
Sep 20, 2019 Beacon Stories
Shawn was diagnosed with Usher syndrome at a young age. Shawn now stays involved with the blind community and participates in his local blind hockey league. In his own words, he shares his journey at the Toyota-USA Hockey Disabled Hockey Festival.
Sep 6, 2019 Beacon Stories
In honor of National Guide Dog Month this September, Davida is sharing her experience with the Guide Dog Foundation for the Blind and how she found a perfect match in her new guide dog, Chubb.
Aug 19, 2019 Beacon Stories
Jen Walker was diagnosed with retinitis pigmentosa at 14 years old and didn’t feel ready to meet others with retinal diseases until many years later. Jen now wants to connect with others and raise awareness for the fighting blindness community.