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Coping with Life Changes as Vision Declines
WellnessFor individuals who have been living with vision loss for some time, the journey often involves periods of adjustment. These moments can be deeply emotional, symbolizing a loss of independence or identity.
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Living With Usher Syndrome: Practicing, Prioritizing, and Protecting Your Mental Health
Living and Thriving WellnessIn this deeply personal reflection, Rebecca Alexander, LCSW-R, MPH, RYT, shares the emotional journey of living with Usher syndrome—not as a single moment of diagnosis, but as an ongoing evolution of identity, loss, and resilience. Drawing from her experience as a psychotherapist, she offers powerful insights and coping tools for navigating grief, preserving connection, and embracing the full complexity of the human experience.
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Navigating Mental Health Challenges in the Blind and Low Vision Community
Living and Thriving WellnessFor individuals living with blindness or low vision, each day can bring unique challenges—from navigating the physical world to managing the emotional toll of vision changes.
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Coping with a Vision Loss Diagnosis
Living and Thriving WellnessNewly-diagnosed patients frequently struggle with grief and depression, similar to losing a loved one. When managed using healthy coping methods and strategies, this is a natural and normal response to vision loss.
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Resource
Microsoft Teams is a cloud-based collaboration tool that allows users to communicate and work together in real-time.
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ProQR Announces Virtual Presentations at Scientific Conferences
ResourceProQR Therapeutics N.V. (Nasdaq:PRQR), a company dedicated to changing lives through the creation of transformative RNA therapies for severe genetic rare diseases, today announced virtual presentations at the Ophthalmology Futures Retina Forum, European Society of Retina Specialists (Euretina) congress and the Annual Meeting of the American Academy of Optometry (AAOpt).
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Zoom is a cloud-based video communications app that allows you to set up virtual video and audio conferencing, webinars, live chats, screen-sharing, and other collaborative capabilities.
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Resource
Dr. Jacque Duncan, UCSF Professor of Clinical Ophthalmology, is currently working on therapies restoring vision for retinal degenerative diseases. Dr. Duncan has hope and optimism for the future that vision will be restored for those with retinal diseases, thanks in part by the Foundation’s work.
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