Stories

Being diagnosed with anything can be hard, and you certainly will go through a range of emotions. You are not alone. Many have been in your shoes and have dealt with their diagnosis in different ways. Some feel a sense of relief when they can share their stories with others who are going through a similar situation. The Foundation Fighting Blindness is a beacon for those affected by blinding retinal diseases. With our Beacon Stories, we share individual’s journeys with their disease and how their drive fuels them to pursue their passions. Not only do we find their stories aspirational, we believe these individuals are true beacons of strength, champions of courage, and advocates for hope. We hope these stories provide you with light that will get you through the darkness. Collectively, we are stronger together – as a community. Do you have a story you'd like to share with the Fighting Blindness community? Let us know at Marketing@FightingBlindness.org.

Filter Results

Filter by Type
Filter by Topic

Displaying 121–130 of 174

  • May 18, 2020

    An Artist, First and Foremost

    Allen has always wanted to be known as an artist, first and foremost. His photography hints at the ever-changing nature of people’s lives and their environment, much like his own progression with retinitis pigmentosa (RP).

    Beacon Stories My Retina Tracker Patient Stories

  • Apr 20, 2020

    Coping with COVID-19: Welcome to the “New Normal”

    We checked in with a few of the Foundation’s volunteers to get their perspective on these unprecedented times.

    Beacon Stories

  • Apr 13, 2020

    Sue Lives Life to the Fullest and Wants to Help Others Do the Same

    Meet Sue Sanger. Sue was diagnosed with retinitis pigmentosa (RP) at the age of 29 but has continued to travel, advance in her legal and political career, and more. In the following story, Sue explains, in her own words, all she has accomplished since learning she has RP and why she’s a supporter and member of the Foundation Fighting Blindness Legacy Society.

    Beacon Stories

  • Apr 6, 2020

    Carolyn’s Beauty Within

    Carolyn is a business professional and beauty industry leader in Raleigh, North Carolina. In spite of her diagnosis with retinitis pigmentosa, Carolyn pursues exactly what she wants and knows what she is purposed to do in her life.

    Beacon Stories

  • Mar 23, 2020

    No Limits for Determined Paralympian Triathlete

    Paralympian Elizabeth Baker says that Stargardt disease has made her a tougher person.

    Beacon Stories

  • Mar 18, 2020

    Llura Ambler Gund

    February 14, 1941 – March 15, 2020

    Beacon Stories

  • Mar 9, 2020

    No Slowing Down for LCA

    Braydon was diagnosed with an inherited retinal disease at only two years old. Eight years later, after his mom enrolled him in the My Retina Tracker® Program, Braydon learned his disease was LCA.

    Beacon Stories My Retina Tracker Patient Stories

  • Feb 24, 2020

    Blind But Not Broken

    This is a father’s story on the night that changed his and his family’s life forever.

    Beacon Stories

  • Feb 21, 2020

    Marie O'Leary

    “If someone like me, a woman with retinitis pigmentosa and a part-time job, can leave a legacy gift, you can too! And trust me, it feels really, really good to know that part of your life’s work will contribute to something meaningful for future generations.”

    Beacon Stories

  • Feb 21, 2020

    Anne Vannice

    “I decided to include the Foundation in my estate plans,” Anne explained, “so that if the time ever comes when my grandchildren, or anyone else’s, experience vision loss, the scientists will have figured out how to help them.”

    Beacon Stories