Stories
Displaying 111–120 of 161
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Beacon Stories
Carolyn is a business professional and beauty industry leader in Raleigh, North Carolina. In spite of her diagnosis with retinitis pigmentosa, Carolyn pursues exactly what she wants and knows what she is purposed to do in her life.
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No Limits for Determined Paralympian Triathlete
Beacon StoriesParalympian Elizabeth Baker says that Stargardt disease has made her a tougher person.
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Beacon Stories
Braydon was diagnosed with an inherited retinal disease at only two years old. Eight years later, after his mom enrolled him in the My Retina Tracker® Program, Braydon learned his disease was LCA.
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Beacon Stories
This is a father’s story on the night that changed his and his family’s life forever.
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Beacon Stories
“If someone like me, a woman with retinitis pigmentosa and a part-time job, can leave a legacy gift, you can too! And trust me, it feels really, really good to know that part of your life’s work will contribute to something meaningful for future generations.”
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Beacon Stories
“I decided to include the Foundation in my estate plans,” Anne explained, “so that if the time ever comes when my grandchildren, or anyone else’s, experience vision loss, the scientists will have figured out how to help them.”
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Al Linde “Keeps on Rolling” with Macular Degeneration
Beacon StoriesAl Linde has learned to “just roll with it” throughout his life to overcome many challenges.
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Ashlyn Experiences Joy in Day-To-Day Life After Sight Is Restored
Beacon StoriesAshlyn’s vision was restored following her treatment with the LUXTURNA gene therapy.
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Beacon Stories
Dr. Marciello doesn’t let a Stargardt disease diagnosis get in the way of his twin passions: medicine and baseball.
