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Eye on the Cure
The Eye on the Cure Podcast from the Foundation Fighting Blindness provides science information, news, and insights from the world of vision and retinal diseases. The podcasts are hosted by Ben Shaberman, vice president, science communications, and often include conversations with guests from the research and vision communities.
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Eye on the Cure Podcast | Episode 85: Cindy Elden
Eye on the CureCindy Elden talks about her journey with Usher syndrome type 3 (USH3), the decades-long work and persistence of her non-profit, and the clinical trial it launched for an USH3 small molecule therapy.
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Beacon Stories Wellness
Rob Howden’s journey with AMD and GA truly shows that individuals can take control of their vision loss journey and find strength within their community. His story emphasizes the importance of proactive treatment, taking care of your mental health, and the invaluable support of friends and neighbors.
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Living With Usher Syndrome: Practicing, Prioritizing, and Protecting Your Mental Health
Living and Thriving WellnessIn this deeply personal reflection, Rebecca Alexander, LCSW-R, MPH, RYT, shares the emotional journey of living with Usher syndrome—not as a single moment of diagnosis, but as an ongoing evolution of identity, loss, and resilience. Drawing from her experience as a psychotherapist, she offers powerful insights and coping tools for navigating grief, preserving connection, and embracing the full complexity of the human experience.
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Foundation News
The Foundation Fighting Blindness develops strategic partnership with Alma, a network of 25,000 mental health professionals dedicated to simplifying access to high-quality, affordable mental healthcare.
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Navigating Mental Health Challenges in the Blind and Low Vision Community
Living and Thriving WellnessFor individuals living with blindness or low vision, each day can bring unique challenges—from navigating the physical world to managing the emotional toll of vision changes.
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Celebrating National DNA Day with Dr. Benjamin Bakall
Beacon StoriesApril 25 is National DNA Day, commemorating the completion of the Human Genome Project and the discovery of DNA’s double helix. To celebrate, we’re spotlighting Dr. Benjamin Bakall, a retinal specialist and ophthalmologist at Associated Retina Consultants in Phoenix, Arizona. Dr. Bakall’s dedication to genetics and patient care highlights the importance of genetic testing in advancing treatments and cures for inherited retinal diseases.
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Resources for individuals to use to contact their congress members about the policy changes with NIH.
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Leber Congenital Amaurosis Research Advances
Research NewsRecent developments in research on Leber congenital amaurosis
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