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Displaying 111–120 of 215 diseases results
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The Retinal Degeneration Fund invests in a $78M Series B for Perceive Biotherapeutics
In the PressThe investment supports the clinical development of two novel programs, both with the aim of being protective against vision loss.
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Resourceful Advocate for Research
Beacon StoriesManorthia was diagnosed with retinitis pigmentosa (RP) when she was 22 years old but didn’t start experiencing considerable vision loss until years later. Once she began to notice her vision deteriorating more rapidly, she reached out to the Foundation Fighting Blindness to get involved with the blindness community.
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Foundation News
Uni-Rare Study will improve clinical understanding of more IRDs and boost development of potential therapies.
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Charlie Kramer: Life Coach for the Disabled
Beacon StoriesRetinitis pigmentosa (RP) runs in Charlie Kramer’s family, so it wasn’t a surprise when he was diagnosed at a young age. But now, at 29 years old, Charlie is following his passion for helping and empowering others as a full-time life coach for those with disabilities.
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In the Press
On World Sight Day 2022, Retina International is presenting data from a report on its study into the Socio-economic Impact of late-stage age-related macular degeneration (AMD) in Bulgaria, Germany, and USA.
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SeeShore Fest Fundraiser Success
Beacon StoriesHeather Napolitano started her DIY fundraiser, SeeShore Fest, seven years ago. The event has now raised over $109,000 to fund research finding treatments and cures for blinding diseases.
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RD Fund Participates in a €75 Million Series B for SparingVision
In the PressProceeds to fund first, in-human trials of breakthrough gene-agnostic therapy products and advance CRISPR-based genome editing portfolio.
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Youngest U.S. Blind Golfer Heading to the 2022 Vision Cup
Beacon StoriesTyler Cashman is one of six U.S. team members that have been selected to participate in the upcoming 2022 Vision Cup, an international golf competition for the blind hosted by the United States Blind Golf Association (USBGA), taking place on September 19-22, 2022.
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Decades of Dedication Fighting for His Family and Himself
Beacon StoriesDan Day is one of over ten people in his family, spanning six generations, affected with retinitis pigmentosa (RP). So to “get off the sidelines and join the fight” for himself and his family, Dan has dedicated over 25 years of service to the Foundation Fighting Blindness.
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Research News
Funding for the new grants was made possible by Foundation’s strong donor base and philanthropic partners
