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Displaying 1–10 of 215 diseases results
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Beacon Stories
Lindsey Rambo once believed treatment was meant for someone else. Today, she’s the first participant in a groundbreaking gene therapy trial for LCA5—and her journey is lighting the way for what’s possible in the future of vision research.
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Opus Genetics Receives FDA Clearance to Launch Clinical Trial for Best1 Gene Therapy
Research NewsThe Foundation funded earlier, proof-of-concept studies for the Best1 gene therapy and later launched Opus to develop several IRD gene therapies.
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jCyte Launches New Phase 2 Clinical Trial for its Cell-Based RP Therapy
Research NewsThe trial is evaluating a cell dose that is 50 percent higher than the highest dose used in a previous Phase 2b trial.
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Invisible Disability
When I walk around the neighborhood with my white cane, I still worry about stigma and how people perceive me. I’ve had to remind myself that the cane is a tool to keep me safe.
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Eye on the Cure Podcast | Episode 90: Dr. Christina Ohnsman
Eye on the CureDr. Christina Ohnsman talks about Tern Therapeutics, a start-up company she co-founded to develop gene therapies for Batten disease and potentially other conditions.
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Wet AMD Treatment Susvimo Preserves Vision for Five Years in Phase 3 Clinical Trial
Research NewsSusvimo is an FDA-approved treatment that continuously delivers drug through a tiny, implanted capsule
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Perseverance of a Six-Time Paralympian
Beacon StoriesAs a six-time goalball Paralympian, Lisa has turned her progressive vision loss into a powerful source of strength and inspiration. Through her incredible journey—overcoming barriers, achieving five Paralympic medals, and becoming a passionate disabilities advocate—Lisa exemplifies how embracing life’s challenges can lead to extraordinary success and personal growth.
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Eye on the Cure Podcast | Episode 89: Dr. Christine Curcio
Eye on the CureDr. Curcio talks to host Ben about her epic career and recent Proctor Medal lecture with Dr. Cynthia Owsley at the 2025 ARVO conference.
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Ocugen Launches Phase 2/3 Clinical Trial for Stargardt Disease Gene-Modifier Therapy
Research NewsThe therapy delivers copies of the RORA gene to address multiple disease pathways.
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Shifting Perspectives—One Video at a Time
Beacon StoriesNatasha Caudill is a content creator and disability advocate who uses her platform of over 1.3 million TikTok followers to shift perceptions about blindness and achromatopsia. Through candid and educational videos, she invites others to experience the world through her eyes, literally in black and white. Her content reminds us that disability isn’t a limitation but simply a different and equally valuable way of experiencing the world.
