Search
Selected Filter
Displaying 1–10 of 303 diseases results
-
Finding Her Way Back to the Dance Floor
Beacon StoriesThyroid eye disease (TED) affected nearly every part of Lala’s life, from bulging eyes, painful headaches and light sensitivity, to losing the ability to ballroom dance that made her feel most like herself. When an unexpected encounter at work became a turning point, Lala found the motivation to seek treatment and begin her journey back to the dance floor.
-
Eye on the Cure Podcast | Episode 105: A Race Against Blindness
Eye on the CureDr. Steven Johnston shares how his family’s experience with vision loss inspired the launch of their own non-profit, A Race Against Blindness.
-
Learning and Building a Future With Vision Loss
Invisible DisabilityI have a degree to earn and changes in my vision to adapt to. My hope is to build a useful life and eventually encourage others who are also finding their way.
-
“I Choose to Find Meaning in It”
Beacon StoriesAfter learning at 15 that he had retinitis pigmentosa (RP), Wyatt Edmondson found purpose in sharing his experiences through music and advocacy. Today, the Nashville singer-songwriter uses his voice to uplift the vision loss community while helping others feel seen and understood.
-
A Race Against Blindness Celebrates Recent Fundraiser Winners During Blindness Awareness Month
In the PressNonprofit highlights winners and launches its popular Build Your Own Adventure Van fundraiser to advance research for childhood blindness.
-
Emerging gene therapy for RDH12-associated Leber congenital amaurosis cleared for clinical trials
Research NewsFDA clears investigational new drug application for OPGx-RDH12 from Opus Genetics
-
A Career I Never Planned, a Mission I Never Expected
Invisible DisabilityDiagnosed with Stargardt disease at 18, Tom went on to build a remarkable four-decade career in low vision rehabilitation, helping countless individuals and families navigate vision loss. In his memoir, ‘There’s No Vision Like Low Vision,’ he reflects on the journey from uncertainty to purpose and the lessons he hopes will inspire others.
-
Eye on the Cure
Dr. Daniel Chung explains what laru-zova is, how it works and next steps as Beacon works to earn FDA approval for the potential gene therapy.
-
Beacon Stories
Maggie grew up watching her mom navigate retinitis pigmentosa (RP), shaping her understanding of how vision loss affects entire families. Today, she uses her voice to raise awareness, support research, and help others affected by blinding diseases feel less alone.
-
“Asking for Help Is Not a Weakness”
Beacon StoriesAlthough signs of retinitis pigmentosa (RP) began much earlier, Marcela San Miguel Cantu wasn’t diagnosed until age 40 and only later came to fully understand how her vision was changing. Through asking for help and connecting with others, she found support, community, and hope for the future.
.png)
