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Displaying 1–10 of 235 diseases results
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Research News
First patient treated in Part B of ASTRA trial evaluating SB-007.
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Eye on the Cure Podcast | Episode 98: Jonathan & Josh Steinberg
Eye on the CureJosh Steinberg and his father, Jon, talk with host Ben Shaberman about their close-knit family’s journey with Josh’s vision loss.
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Eye on the Cure Podcast | Episode 97: Lindsey Rambo
Eye on the CureA mom, wife, and a special education teaching assistant, Lindsey is the first participant in a groundbreaking gene therapy trial for Leber congenital amaurosis (LCA5).
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The Super-Sticky Shoes: Living With Retinitis Pigmentosa When the World Can’t See the Glue
Invisible DisabilityIn this deeply personal reflection, author Patti Brite Taylor shares what it feels like to live with retinitis pigmentosa—and how that experience inspired her mystery novel, The Vanishing Cactus, centered on a heroine with low vision.
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Beacon Therapeutics Launches Clinical Trial for Bilateral Administration of XLRP Gene Therapy
Research NewsThe company has also fully enrolled the Phase 2/3 VISTA clinical trial for its XLRP gene therapy.
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Excerpt from Never Seen the Stars by Kate Korsh
Invisible DisabilityRead an excerpt from the novel, Never Seen the Stars, where Hattie reflects on living with retinitis pigmentosa, navigating family dynamics, and finding hope in her choices.
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Beacon Stories
Runner, storyteller, and community builder — Eavan O’Neill turned her Stargardt disease diagnosis into a mission to connect and uplift others through her own lived experiences. Through Brightside, she’s redefining what it means to live boldly and authentically with vision loss.
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Eye on the Cure Podcast | Episode 96: Dr. Deniz Dalkara
Eye on the CureDr. Dalkara is a research director at INSERM in France and works on therapies for people with retinitis pigmentosa (RP).
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Belite Bio to Seek FDA Approval for its Stargardt Disease Drug
Research NewsTinlarebant slowed disease progression by 36 percent in the Dragon Phase 3 clinical trial.
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My Journey with Retinitis Pigmentosa and the Foundation Fighting Blindness
Beacon StoriesZach was diagnosed with Bardet-Biedl syndrome (BBS) through genetic testing from the Foundation’s My Retina Tracker® Program. Today, he is looking ahead with purpose — supporting research through the Foundation, planning for his future, and encouraging others to do the same.
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