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Displaying 101–110 of 215 diseases results
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I Am Blind, but I Am Not the Blindness
WellnessDr. Ann Wagner is a Board-Certified Clinical Psychologist who has worked at the Minneapolis VA HCS for the past 23 years, serving veterans and their families. She works primarily on the PTSD Clinical Team providing evidenced-based assessments and interventions for PTSD and other trauma-related problems. Dr. Wagner herself is legally blind due to retinitis pigmentosa.
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Traveling With a Guide Dog: Advice from a Seasoned Traveler
Beacon StoriesInternational Guide Dog Day, April 26th, is extra special to Janni Lehrer-Stein, as she’s celebrating the 5th anniversary of graduating with “the world’s best guide dog,” Shiloh. Janni, who has retinitis pigmentosa, has traveled to five countries outside of the United States with Shiloh and is sharing advice for traveling with a guide dog.
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Beacon Stories
Sean was diagnosed with dry age-related macular degeneration (AMD) in his 40s. Now Sean is using his AMD as an opportunity to educate others about the spectrum of blinding diseases while fundraising for the Foundation Fighting Blindness.
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Evolving With Eyesight and Life
Beacon StoriesGavin was diagnosed with Stargardt disease at the age of 19. In his own words, Gavin shares his experience over the last 13 years adjusting to the unpredictability of his vision loss and how being a new parent has shifted his mindset.
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Blind Paralympian Reaching New Heights
Beacon StoriesIsaac Jean-Paul was diagnosed with X-linked juvenile retinoschisis (XLRS) at the age of two. Isaac was always set on being a professional athlete, and now he’s a Paralympian, winning bronze in the long jump in the 2020 Games and breaking the high jump world record three times.
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Rewriting the Narrative as the First Black Deaf-Blind Journalist
Beacon StoriesSteven McCoy has made history as the first black deaf-blind journalist in the world, as he was recently diagnosed with Usher syndrome after a lifelong struggle with hearing loss. Equipped with a passion for storytelling and advocacy, he now uses his voice to create lasting change within the entertainment industry and deaf-blind community.
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A Love Without Limits: How John and Min Conquer Blindness Together
Beacon StoriesIn honor of Valentine’s Day, the Foundation Fighting Blindness brings you a special edition of our Beacon Story series, which covers the unique journey of visually impaired couple John and Min.
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Foundation Fighting Blindness to Host PRPH2 and Associated Retinal Diseases Workshop
Foundation NewsSession to have special translational research emphasis on PRPH2 and inherited macular dystrophies.
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Birding Blind: Identifying Birds by Song
Beacon StoriesMartha Steele has been birding for over 30 years, but the way in which she birds has changed over time. Martha has Usher syndrome, with her central vision declining rapidly in the early 2000s and receiving her first cochlear implant in 2010. Now she birds entirely by ear and has learned the songs of about 150 bird species.
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Fearless Sister Duo Finding Hope
Beacon StoriesApril LuFriu and Melissa Escobio are sisters and best friends who do just about everything together, including having retinitis pigmentosa (RP).
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