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Displaying 101–110 of 242 diseases results
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Jul 8, 2024
Barry Smith and Emily Harding Smith
Beacon Stories“I have spent a lifetime attempting to prove what I can do, which has allowed Emily and I to be in a place where we can help. Please consider joining us.“
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Jul 8, 2024
Blind Guy Biking: Enduring the Trails for Stargardt
Beacon Stories Fundraiser Success StoriesChris Smith, a mountain bike enthusiast who was diagnosed with Stargardt disease, transformed his bike into a lifeline after losing his driver’s license. Now, 15 years later, he’s tackling the grueling 2,745-mile Tour Divide race while raising funds for the Foundation Fighting Blindness.
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Jun 24, 2024
Capturing Life Through A Deaf-Blind Lens
Beacon StoriesBrian Bossert has turned his passion for photography into a successful career. As a commercial photographer and videographer living with Usher syndrome, Brian has a unique perspective and is using his creativity to inspire others as he shares his vision through photos and videos.
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Jun 18, 2024
Beacon StoriesIn her almost eighth decade of life, Toni Mehler has learned to adapt to the unknown, and she draws from those experiences to embrace her diagnosis of AMD.
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Jun 5, 2024
Antabuse Moves into Clinical Trial for People with RP
Research NewsResearchers believe the FDA-approved drug can reduce the hyperactivity of ganglion cells to improve vision.
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May 22, 2024
Foundation NewsAdvancing Research Solutions for PRPH2-Associated Retinal Diseases.
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May 20, 2024
WellnessIsaiah Bingham is the first legally blind football player in Delaware. At just 14 years old, he’s excelling as a team captain and award-winning athlete and is inspiring others as he advocates for those with disabilities.
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May 6, 2024
Beacon StoriesIn honor of the upcoming Mother’s Day, New York Times, USA Today, and Wall Street Journal bestselling author Jennifer Probst is sharing her personal story of her son’s diagnosis with Stargardt disease.
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Apr 25, 2024
Beacon StoriesWe’re honoring National DNA Day with the Danny family! When Sarah and A. J. found out their oldest daughter Lucia had Stargardt disease, it was a challenge to process her diagnosis. And then they realized their other five children could also be affected. Through genetic testing, they learned their five-year-old daughter Sarafina also has Stargardt disease. Now, Lucia and Sarafina have a bond like no other, and call each other the “Stargardt Sisters.”
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Apr 8, 2024
What Does “Blindness” Really Mean?
Beacon StoriesJenny Schisler has retinitis pigmentosa. Jenny wants to spread awareness of what having a visual impairment really means to her and others affected by retinal degenerative diseases.