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Displaying 621–630 of 726 for “retinal diseases”
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Seeing the Whole Person: What Our Community Is Telling Us About Mental Health and Vision Loss
WellnessTwo new surveys, one from people living with blinding diseases and one from the therapists trained to support them, point to the same conclusion: specialized mental health care matters, and the Foundation Fighting Blindness community wants more of it.
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Chicago Chapter Leadership Meeting (December)
- Dec 3, 2026
- 12:00 p.m. - 1:00 p.m. (CDT)
- Virtual
Community EventJoin us for our upcoming Chicago Chapter Meeting as we come together to connect, share updates, and continue driving progress toward treatments and cures for blinding diseases.
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- Oct 27, 2026
- 6:00 p.m. - 8:00 p.m.
- 2500 El Camino Real, Suite 100, Palo Alto, CA 94306
Community EventJoin the Foundation Fighting Blindness for Vision Connection, an enriching and supportive gathering across the Foundation Chapter network for the blind and low vision community.
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Chicago Chapter Leadership Meeting (October)
- Oct 1, 2026
- 12:00 p.m. - 1:00 p.m. (CDT)
- Virtual
Community EventJoin us for our upcoming Chicago Chapter Meeting as we come together to connect, share updates, and continue driving progress toward treatments and cures for blinding diseases.
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Jackson's New Discoveries After LUXTURNA
Beacon StoriesAfter receiving LUXTURNA at age 9, Jackson Kennedy began experiencing everyday moments he had never been able to see before—from ice cubes floating in a glass to traffic moving through a city street. Today, Jackson is an honor roll student and dedicated wrestler looking ahead to college, while embracing the possibilities his treatment has helped make possible.
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FDA accepts new drug application, prioritizes review for potential Stargardt treatment
Research NewsBelite Bio’s tinlarebant could become the first-ever approved treatment for Stargardt disease
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The Clinical Trial That Opened His World
Beacon StoriesAfter decades of adapting to vision loss from retinitis pigmentosa (RP), Manny Fernandez became one of the first people to receive an experimental gene therapy in a clinical trial. The experience not only restored a small part of his peripheral vision but also renewed his hope for the future and inspired him to encourage others to consider clinical trials, too.
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Taking the Stage for Stargardt
Beacon StoriesDiagnosed with Stargardt disease at age nine, Havah Fleisner spent years feeling isolated by her vision loss before discovering confidence through pageantry and advocacy. Now, as Miss Northern Lights Teen 2026, she’s using her platform to create community, raise awareness, and inspire others living with blinding diseases.
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A Legacy of Strength, Adaptability, and Generosity: Richard and Elizabeth Kamis
Beacon StoriesRichard and Elizabeth built a life rooted in resilience, service, and generosity, with Richard’s experience living with retinitis pigmentosa shaping their shared purpose. From breaking barriers in education to helping others, their impact continues to help advance research for generations to come.
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From Hiding to Helping: How Cory Turned Vision Loss Into a Life With No Limits
Beacon StoriesAfter years of hiding his vision loss, Cory Rainford now uses his voice to help others navigate life with choroideremia. As his blinding disease progressed, he worked hard to keep it invisible, even leaving his dream job. Today, through his YouTube channel Legally Blind No Limits, Cory shares honest, humorous videos about adapting and finding community, showing others that life with vision loss can still be full of possibilities.
