Connecting and Empowering the Stargardt Community
The Foundation Fighting Blindness and Alkeus Pharmaceuticals are partnering to create a dedicated space for the Stargardt community—offering year-round opportunities to learn, connect, and share.
Through two unique programs, we’re amplifying the voices and stories that define this community:
Stargardt Coffee Conversations
Hosted by Adam Chodak, evening news anchor and managing editor at News 8 in Rochester, NY, and an advocate personally affected by Stargardt disease, this quarterly social video series offers warm, authentic conversations with members of the Stargardt community.
Each episode explores real-life experiences—from receiving a diagnosis to navigating school, work, and family life—with honesty and hope. Through Adam’s thoughtful perspective and storytelling expertise, Stargardt Coffee Conversations shines a light on the strength, resilience, and connection within the Stargardt community.
The Stargardt Webinar Series
Each quarter, we host an expert-led discussion featuring researchers, clinicians, and community members. Topics are chosen based on feedback from the Stargardt community and explore timely themes such as research advancements, clinical trials, genetic testing, and strategies for living well with vision loss. Every webinar is recorded and available on demand below.
Stargardt Coffee Conversation Episodes
Stargardt Quarterly Webinar Episodes
October 25, 2025 | Dr. Kenneth Fan
We are thrilled to share our latest webinar which focused on the latest research, treatment options, and clinical trials for Stargardt disease.
Featured Speaker – Dr. Kenneth Fan, M.D.
Dr. Kenneth Fan is a distinguished ophthalmologist based in Texas, specializing in inherited retinal disorders like Stargardt disease. Driven by the inspiring resilience of his patients, Dr. Fan is a dedicated clinician and researcher committed to advancing care and treatment for hereditary vision loss. He actively contributes to clinical trials for innovative drug development aimed at slowing or halting the disease's progression, hoping to one day translate these efforts into transformative treatments. Known for his compassionate approach, Dr. Fan is also a passionate advocate for patient education, effectively bridging the complexities of cutting-edge science with personalized care, making him a trusted leader in retinal health.
Sponsored by Alkeus Pharmaceuticals.
