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Displaying 341–350 of 612 for “retinal diseases”
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SeeShore Fest Fundraiser Success
Beacon StoriesHeather Napolitano started her DIY fundraiser, SeeShore Fest, seven years ago. The event has now raised over $109,000 to fund research finding treatments and cures for blinding diseases.
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Decades of Dedication Fighting for His Family and Himself
Beacon StoriesDan Day is one of over ten people in his family, spanning six generations, affected with retinitis pigmentosa (RP). So to “get off the sidelines and join the fight” for himself and his family, Dan has dedicated over 25 years of service to the Foundation Fighting Blindness.
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Gene Knock-Out, Replacement Therapy for RP-RHO Performed Well in Lab Study
Research NewsEditas is planning IND-enabling studies of the two-part treatment in preparation for a clinical trial
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“Great Vision Does Not Require Great Sight”
Beacon StoriesKenyetta has worked to help others through the nonprofit sector for over 25 years, despite being diagnosed with Stargardt disease at the age of 31. Kenyetta is now the chief operating officer of REACH Riverside Development Corporation and has been recognized for her career achievements by many.
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Research News
The company plans to enroll additional patients as young as four years old
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Beacon Stories
At seven years old, Hannah had never seen a lightning bug in the summer or a star in the sky. But after her treatment with LUXTURNA, Hannah can now play outside at night with her brothers and has a new bright future in store.
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Making a stock donation is a powerful way to support the mission of the Foundation Fighting Blindness to drive the research for treatments and cures for blinding diseases affecting 1 in 53 individuals around the world.
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My Retina Tracker Program and Registry Featured in American Journal of Medical Genetics
Research NewsThe paper provides insights into the genetic landscape of inherited retinal diseases
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AGTC Reports Promising Interim Results for XLRP and Achromatopsia Gene Therapy Trials
Research NewsAGTC used Foundation’s My Retina Tracker registry to recruit patients for trials
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Consortium Genetically Tests 40 Percent of People in Israel with IRDs
Research NewsPatient benefits from genetic testing for IRDs include confirmation of their clinical diagnosis, identification of the disease inheritance pattern and risk for other family members, and determination of human studies for emerging therapies that may be appropriate for them.
