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Mar 25, 2024
Adopted into a musical family, Miles Hoyt picked up a guitar at just four years old, and he hasn’t stopped playing since. Now Miles, who has Stargardt disease, and his parents are using music to bring their community together to raise funds for blinding diseases with their Raising Our Sights fundraiser, Smiles for Miles.
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Mar 11, 2024
Influencing Positivity for the Disabled Community
Content creator and social media influencer Stephanie Renberg uses her platforms to raise awareness for blindness and disabilities in hopes that her openness about her Stargardt disease will contribute to a more inclusive and understanding world.
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Feb 12, 2024
“The Future Holds Promise” on International Day of Women and Girls in Science
International Day of Women and Girls in Science is celebrated globally to recognize the critical role women play in science, technology, engineering, and mathematics. To honor this vital day, the Foundation is sharing the story of Dr. Esther Biswas-Fiss.
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Feb 5, 2024
Foundation’s Reach Inspires Partnership for Nixon Family
After Janine’s diagnosis of an IRD caused by a mutation of the PRPH2 gene, she and her husband set out to learn and help all they could. So they started working with the Foundation Fighting Blindness and have launched the ‘PRPH2 and Associated Retinal Degenerations Program.’
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Jan 22, 2024
Blind Advocate Triumphs as a Hockey Pioneer
Josh Schneider is a former teacher and student-athlete whose life took an unexpected turn due to an optic nerve condition. Years after receiving his diagnosis, Josh transformed his passion for sports into a platform for advocacy. Today, he thrives as a blind hockey player, defying expectations and leading two foundations committed to raising awareness and providing support to blind hockey players.
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Dec 4, 2023
The Inspiring Journey of an Endurance Athlete with Cone-Rod Dystrophy
Diagnosed with cone-rod dystrophy in his youth, Dan Berlin has defied all odds by becoming a global force in endurance sports and entrepreneurship. As an accomplished athlete, he has not only dominated marathons across the globe but also co-founded the Team See Possibilities organization, offering support to youth with blinding diseases.
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Nov 13, 2023
IRD Community Loses Usher Syndrome Research Trailblazer William Kimberling, PhD
Dr. Kimberling helped discover the identification and characterization of several genes that cause Usher syndrome.
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Nov 6, 2023
NY Researcher’s App Transforms Commuting for the Visually Impaired
John-Ross Rizzo, a dedicated New York-based researcher, was confronted with life-altering news at a young age when he was diagnosed with choroideremia. Driven by the obstacles he faced due to his condition, he now stands as a key figure leading the development of advanced assistive technology, with the goal of reshaping the daily commutes of those with low vision and blindness.
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Oct 16, 2023
Finding the “Keys to the Kingdom”
Tricia Waechter, who has retinitis pigmentosa (RP), refers to her white canes as the “keys to the kingdom.” Using a white cane has opened a whole new world for Tricia, and that is why her company, Blind Girl Designs, includes white canes on many of their apparel designs.
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Sep 18, 2023
How an Assistive App Developer is Revolutionizing Accessibility
Meet Rebecca Rosenberg, the founder of ReBokeh Vision Technologies, whose journey from engineer to entrepreneur may have been guided by fate. Diagnosed with oculocutaneous albinism (OCA1) at a young age, Rebecca faced numerous obstacles due to the lack of assistive technology tailored to her unique needs. This inspired her to create an app that would revolutionize the world of assistive technology for those with moderate low vision.