Stories
Displaying 11–20 of 152
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Beacon Stories
In her almost eighth decade of life, Toni Mehler has learned to adapt to the unknown, and she draws from those experiences to embrace her diagnosis of AMD.
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Beacon Stories
Isaiah Bingham is the first legally blind football player in Delaware. At just 14 years old, he’s excelling as a team captain and award-winning athlete and is inspiring others as he advocates for those with disabilities.
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Beacon Stories
In honor of the upcoming Mother’s Day, New York Times, USA Today, and Wall Street Journal bestselling author Jennifer Probst is sharing her personal story of her son’s diagnosis with Stargardt disease.
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Beacon Stories
We’re honoring National DNA Day with the Danny family! When Sarah and A. J. found out their oldest daughter Lucia had Stargardt disease, it was a challenge to process her diagnosis. And then they realized their other five children could also be affected. Through genetic testing, they learned their five-year-old daughter Sarafina also has Stargardt disease. Now, Lucia and Sarafina have a bond like no other, and call each other the “Stargardt Sisters.”
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What Does “Blindness” Really Mean?
Beacon StoriesJenny Schisler has retinitis pigmentosa. Jenny wants to spread awareness of what having a visual impairment really means to her and others affected by retinal degenerative diseases.
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Beacon Stories
Adopted into a musical family, Miles Hoyt picked up a guitar at just four years old, and he hasn’t stopped playing since. Now Miles, who has Stargardt disease, and his parents are using music to bring their community together to raise funds for blinding diseases with their Raising Our Sights fundraiser, Smiles for Miles.
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Influencing Positivity for the Disabled Community
Beacon StoriesContent creator and social media influencer Stephanie Renberg uses her platforms to raise awareness for blindness and disabilities in hopes that her openness about her Stargardt disease will contribute to a more inclusive and understanding world.
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“The Future Holds Promise” on International Day of Women and Girls in Science
Beacon StoriesInternational Day of Women and Girls in Science is celebrated globally to recognize the critical role women play in science, technology, engineering, and mathematics. To honor this vital day, the Foundation is sharing the story of Dr. Esther Biswas-Fiss.
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Foundation’s Reach Inspires Partnership for Nixon Family
Beacon StoriesAfter Janine’s diagnosis of an IRD caused by a mutation of the PRPH2 gene, she and her husband set out to learn and help all they could. So they started working with the Foundation Fighting Blindness and have launched the ‘PRPH2 and Associated Retinal Degenerations Program.’
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Blind Advocate Triumphs as a Hockey Pioneer
Beacon StoriesJosh Schneider is a former teacher and student-athlete whose life took an unexpected turn due to an optic nerve condition. Years after receiving his diagnosis, Josh transformed his passion for sports into a platform for advocacy. Today, he thrives as a blind hockey player, defying expectations and leading two foundations committed to raising awareness and providing support to blind hockey players.
