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Beacon Stories
People with retinal disease describe their experiences “not looking blind.”
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CME — What It Is, and Why People with Retinal Diseases Should Know About It
Research NewsDr. Gerald Fishman discusses cystoid macular edema (CME), a potentially damaging accumulation of fluid in the retina affecting up to 32 percent of people with retinitis pigmentosa (RP).
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A Stem-Cells Video for Kids (and Newbies of All Ages)
Research NewsBiology and genetics can be difficult to understand for even an educated adult, so when something kid-friendly is produced, especially a video, we are eager to share it.
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Low-Hanging Fruit: Repurposing Drugs to Treat Retinal Diseases
Research NewsBecause repurposing relies on prior research and clinical data, it reduces the cost and time needed to establish a new therapeutic application for the drug.
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Changing Someone’s Life: A New Video Emphasizes the Need to Support FFB’s Mission
Beacon StoriesAllison Corona is one of 40 people with Leber congenital amaurosis who’ve benefitted from a gene therapy clinical trial.
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Genetics 101: How Some Retinal Diseases are Inherited
Research NewsTo understand heredity, you have to know a little about genetics. Below is a review of the three major genetic-disease inheritance patterns.
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Ready for the Spotlight: Rebecca Alexander Shares Her Story of Living with Usher Syndrome
Beacon Stories“…the best thing is to reach out and network, and access all the resources. The more invested you are in what’s out there, the more you get back.”
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Fascinating Facts About Retinal Cells
Research NewsThe retina is like a multi-layer cake, with each layer comprised of different types of cells, all playing important roles in retinal health and vision.
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Inspired by Progress in Usher Syndrome Research
Research NewsMark Pennesi, M.D., Ph.D., a Foundation-funded clinical researcher at the Casey Eye Institute, discusses the first human study of gene therapy for Usher syndrome type 1B.
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How Evolution is Leading to Gene Therapies for More Retinal Diseases
Research NewsAn innovative genetic-engineering approach called “directed evolution” to find optimal gene-delivery systems based on adeno-associated viruses (AAVs).
