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Learning to Fall After Vision Loss
Beacon StoriesWhen Justin’s vision loss progressed quickly due to retinitis pigmentosa at 25 years old, he thought skateboarding wouldn’t be possible anymore. Ten years later, with the help of his white cane and audio devices, Justin is now working to enhance accessibility in skateboarding for the blind and visually impaired community.
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Foundation Fighting Blindness Appoints Richele Donat, SPHR, as Chief Human Resources Officer
Foundation NewsMs. Donat brings over twenty years of successful human resource leadership experience to the Foundation executive team
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RD Fund Appoints Tony Adamis, MD to Board of Directors
Foundation NewsThe RD Fund announces the appointment of Anthony (Tony) Adamis, MD, to its board of directors.
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RD Fund Launches Opus Genetics to Advance Gene Therapies for Inherited Retinal Diseases
Research NewsFirst two programs are for Leber congenital amaurosis: LCA5-lebercillin and LCA13-RDH12
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MeiraGTx and Janssen Recruiting for Phase 3 XLRP Gene Therapy Clinical Trial
Research NewsVisit www.LUMEOSstudy.com for more information about trial
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The Beauty in Embracing Yourself
Beacon StoriesAward-nominated recording artist Lachi has collaborated with some of the biggest names in the industry with millions of streams on her music. But with all her many amazing musical accomplishments, it wasn’t until a few years ago that she fully embraced herself as a legally blind artist who identifies with the disability community as closely as she does with music.
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The Usher 1B Workshop is designed to bring together leading experts from academia and industry, to discuss openly, and in detail, what is known about Usher 1B disease pathology, disease models, clinical characteristics and therapeutic approaches.
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Beacon Stories
The faces behind RP Hope, Save Sight Now, and Sofia Sees Hope are all immensely dedicated to their nonprofit’s missions. The inspiration behind these organizations is similar, but their story and commitment are uniquely personal.
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BioBonds in New York Times: Ask Congress to Support Biomedical Research for Treatments and Cures
In the PressKaren Petrou invented a new funding model for curing blindness. Proposed legislation aims to apply it to medical research more generally.
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Girl Scouts are Changing the World One Crosswalk at a Time
Beacon StoriesInspired by their troop leader diagnosed with Usher syndrome, Girl Scout Troop 1673 is hoping to change the world, one crosswalk at a time, with their Paint It Yellow challenge.
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