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VISIONS 2024, the global conference (June 20–21, 2024) of the Foundation Fighting Blindness, provides an excellent opportunity to connect with others from the blind and low vision community and learn about the latest research advancements, products and services for members of our community.
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Beacon Stories
In honor of the upcoming Mother’s Day, New York Times, USA Today, and Wall Street Journal bestselling author Jennifer Probst is sharing her personal story of her son’s diagnosis with Stargardt disease.
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Eye on the Cure Podcast | Episode 65: Matthew Whitaker
Eye on the CureMatthew Whitaker talks to host Ben Shaberman about his remarkable achievements and success as a young jazz pianist and composer.
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Atsena’s XLRS Gene Therapy Shows Efficacy in Phase 1/2 Clinical Trial
Research NewsThe XLRS gene therapy was well tolerated and resolved damaging schisis cavities in patients receiving the lowest dose.
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Foundation Fighting Blindness To Host Annual 2024 Gala Night for Sight
Foundation NewsThe May 9th gala will raise awareness and fund research leading to treatments and cures for blinding diseases.
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VISIONS 2024, the national conference of the Foundation Fighting Blindness, is a one-of-a-kind event in which individuals who are visually impaired, and their families, have the opportunity to hear about exciting advancements in blindness research.
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Beacon Stories
We’re honoring National DNA Day with the Danny family! When Sarah and A. J. found out their oldest daughter Lucia had Stargardt disease, it was a challenge to process her diagnosis. And then they realized their other five children could also be affected. Through genetic testing, they learned their five-year-old daughter Sarafina also has Stargardt disease. Now, Lucia and Sarafina have a bond like no other, and call each other the “Stargardt Sisters.”
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SalioGen Developing Novel Gene Insertion Therapy for Stargardt Disease
Research NewsThe company’s innovative Gene Coding™ platform enables seamless insertion of DNA into selective genomic locations.
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Eye on the Cure Podcast | Episode 64: Dr. Kapil Bharti
Eye on the CureKapil Bharti, PhD, a senior investigator and director of the Intramural Research Program at the National Eye Institute (NEI), talks with host Ben Shaberman about his clinical trial underway for an innovative cell therapy for geographic atrophy (advanced dry age-related macular degeneration) as well as a clinical trial of the drug metformin for Stargardt disease.
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Exciting News from the Foundation Fighting Blindness! We’re launching text messaging to keep you updated on important news and information. If you’d like to continue receiving our texts, no action needed. If not, reply STOP to opt out. Stay connected with us!
