The most powerful campaigns often start from the most personal places. Meet some of the Vision Warriors behind the momentum:

After my son was diagnosed with LCA, we wanted to do more than hope. We hosted a neighborhood block party that raised $8,000—and helped us feel less alone.

Sam, Fundraiser and Parent

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  • Sep 22, 2025

    A Family United: Thomas’ Hero’s Journey with CRB1

    When Becky’s son Thomas was diagnosed with a rare CRB1-associated disease, their family’s world changed. But today, Becky and Thomas are embracing advocacy, community, and research as they work to raise awareness and fuel progress toward treatments and cures.

    Beacon Stories Fundraiser Success Stories
  • Sep 8, 2025

    Life Through Mav’s Eyes

    Maverick, a determined and adventurous 11-year-old, was diagnosed with X-linked retinoschisis (XLRS) at age six, which led his family to find support and resources through the Foundation Fighting Blindness. Since his diagnosis, Mav continues to pursue his passions in sports and outdoor activities, inspiring his family with his resilience and positive attitude.

    Beacon Stories Fundraiser Success Stories
  • Jul 8, 2024

    Blind Guy Biking: Enduring the Trails for Stargardt

    Chris Smith, a mountain bike enthusiast who was diagnosed with Stargardt disease, transformed his bike into a lifeline after losing his driver’s license. Now, 15 years later, he’s tackling the grueling 2,745-mile Tour Divide race while raising funds for the Foundation Fighting Blindness.

    Beacon Stories Fundraiser Success Stories
  • Mar 25, 2024

    Rocking On With Stargardt

    Adopted into a musical family, Miles Hoyt picked up a guitar at just four years old, and he hasn’t stopped playing since. Now Miles, who has Stargardt disease, and his parents are using music to bring their community together to raise funds for blinding diseases with their DIY fundraiser, Smiles for Miles.

    Beacon Stories Fundraiser Success Stories
  • May 12, 2023

    Wine for a Cure

    Lindsey Blankenship, president of the Foundation Fighting Blindness Colorado Chapter, has created a one-of-a-kind Raising Our Sights Event. Wine for a Cure aims to spread awareness and fundraise on behalf of the Foundation Fighting Blindness with two signature wines from the Oregon Winery, Stoller Family Estates. The featured wines are a Chardonnay named “Variant” and a Pinot Noir named “Pigmentosa.”

    Fundraiser Success Stories
  • Sep 26, 2022

    SeeShore Fest Fundraiser Success

    Heather Napolitano started her DIY fundraiser, SeeShore Fest, seven years ago. The event has now raised over $109,000 to fund research finding treatments and cures for blinding diseases.

    Beacon Stories Fundraiser Success Stories
  • Nov 22, 2021

    Racing for a Reason

    Sean Teare has completed a marathon and a triathlon as DIY fundraisers for the Foundation Fighting Blindness.

    Fundraiser Success Stories
  • Oct 11, 2019

    The Bergstein’s Are Striking Out Blindness

    The Bergstein family has always been passionate about helping the Foundation Fighting Blindness.

    Fundraiser Success Stories