The most powerful campaigns often start from the most personal places. Meet some of the Vision Warriors behind the momentum:
After my son was diagnosed with LCA, we wanted to do more than hope. We hosted a neighborhood block party that raised $8,000—and helped us feel less alone.
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A Family United: Thomas’ Hero’s Journey with CRB1
Beacon Stories Fundraiser Success StoriesWhen Becky’s son Thomas was diagnosed with a rare CRB1-associated disease, their family’s world changed. But today, Becky and Thomas are embracing advocacy, community, and research as they work to raise awareness and fuel progress toward treatments and cures.
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Beacon Stories Fundraiser Success Stories
Maverick, a determined and adventurous 11-year-old, was diagnosed with X-linked retinoschisis (XLRS) at age six, which led his family to find support and resources through the Foundation Fighting Blindness. Since his diagnosis, Mav continues to pursue his passions in sports and outdoor activities, inspiring his family with his resilience and positive attitude.
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Blind Guy Biking: Enduring the Trails for Stargardt
Beacon Stories Fundraiser Success StoriesChris Smith, a mountain bike enthusiast who was diagnosed with Stargardt disease, transformed his bike into a lifeline after losing his driver’s license. Now, 15 years later, he’s tackling the grueling 2,745-mile Tour Divide race while raising funds for the Foundation Fighting Blindness.
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Beacon Stories Fundraiser Success Stories
Adopted into a musical family, Miles Hoyt picked up a guitar at just four years old, and he hasn’t stopped playing since. Now Miles, who has Stargardt disease, and his parents are using music to bring their community together to raise funds for blinding diseases with their DIY fundraiser, Smiles for Miles.
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Fundraiser Success Stories
Lindsey Blankenship, president of the Foundation Fighting Blindness Colorado Chapter, has created a one-of-a-kind Raising Our Sights Event. Wine for a Cure aims to spread awareness and fundraise on behalf of the Foundation Fighting Blindness with two signature wines from the Oregon Winery, Stoller Family Estates. The featured wines are a Chardonnay named “Variant” and a Pinot Noir named “Pigmentosa.”
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SeeShore Fest Fundraiser Success
Beacon Stories Fundraiser Success StoriesHeather Napolitano started her DIY fundraiser, SeeShore Fest, seven years ago. The event has now raised over $109,000 to fund research finding treatments and cures for blinding diseases.
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Fundraiser Success Stories
Sean Teare has completed a marathon and a triathlon as DIY fundraisers for the Foundation Fighting Blindness.
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The Bergstein’s Are Striking Out Blindness
Fundraiser Success StoriesThe Bergstein family has always been passionate about helping the Foundation Fighting Blindness.