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The Inspiring Journey of an Endurance Athlete with Cone-Rod Dystrophy
Beacon StoriesDiagnosed with cone-rod dystrophy in his youth, Dan Berlin has defied all odds by becoming a global force in endurance sports and entrepreneurship. As an accomplished athlete, he has not only dominated marathons across the globe but also co-founded the Team See Possibilities organization, offering support to youth with blinding diseases.
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Eye on the Cure Podcast | Episode 57: James Rath
Eye on the CureJames Rath, a renowned filmmaker and accessibility consultant, talks to host Ben Shaberman about his vision loss journey and travel documentary, Blindspots. The new streaming program, on CuriosityStream.com, follows James as he explores the globe in search of accessible adventures, remarkable blind personalities, and great food.
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Foundation Fighting Blindness Appoints Jeff Klaas as Chief Strategy and Innovation Officer
Foundation NewsKlaas brings over twenty years of experience to lead strategies aimed at elevating engagement and revenue.
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IRD Community Loses Usher Syndrome Research Trailblazer William Kimberling, PhD
Beacon StoriesDr. Kimberling helped discover the identification and characterization of several genes that cause Usher syndrome.
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Eye on the Cure Podcast | Episode 56: Michael Voevodsky, MBA, CEO
Eye on the CureMichael Voevodsky, MBA, CEO at MitoChem Therapeutics, talks to host Ben Shaberman about his company’s emerging, gene-agnostic treatment designed to boost mitochondrial function for preserving vision in people with retinitis pigmentosa, age-related macular degeneration, and other retinal conditions.
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Kiora Reports Vision Restoration in Phase 1/2 Clinical Trial for Photoswitch Therapy
Research NewsThe company’s molecule is designed to restore some vision to people with ultra-low or no vision caused by advanced retinitis pigmentosa and other retinal diseases.
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NY Researcher’s App Transforms Commuting for the Visually Impaired
Beacon StoriesJohn-Ross Rizzo, a dedicated New York-based researcher, was confronted with life-altering news at a young age when he was diagnosed with choroideremia. Driven by the obstacles he faced due to his condition, he now stands as a key figure leading the development of advanced assistive technology, with the goal of reshaping the daily commutes of those with low vision and blindness.
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New Report: Vitamin A Supplementation Provides No Vision Benefit to RP Patients
Research NewsThe report also concludes that vitamin E supplementation accelerates vision loss for RP patients
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Foundation News
First of its Kind Collaboration Marries Genomics Data with World’s Largest Database of Ophthalmologic Patient Encounters to Improve Accuracy of Clinical Research.
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