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Coping with a Vision Loss Diagnosis
Being diagnosed with an eye condition that causes partial or complete vision loss is a highly emotional experience. Vision loss may come unexpectedly and be frightening. Newly-diagnosed patients frequently struggle with grief and depression, similar to losing a loved one. When managed using healthy coping methods and strategies, this is a natural and normal response to vision loss.
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Offer support to patients with inherited eye diseases
In the PressWhile genetic testing can direct treatment and identify those at risk, it is important to have support available when patients test positive.
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Returning the favor: Never too late to give back as a premium surgeon
In the PressWhether local or international, through donation of services or funds, there is a way for everyone to give back.
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National Science Call - 12/4/2019
PowerPoint presentation with audio from the National Science Call, recorded on December 4, 2019
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Foundation News
Known as Pro-EYS, the study will help researchers design clinical trials for potential therapies
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Beacon Stories
Dr. Marciello doesn’t let a Stargardt disease diagnosis get in the way of his twin passions: medicine and baseball.
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FDA Authorizes Stem Cell Clinical Trial for RP in Los Angeles
Research NewsPhase 1/2a human study will evaluate neural progenitors for preserving vision
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AGTC Announces Development of Stargardt Disease Gene Therapy
Research NewsDual-vector delivery system designed to deliver the large ABCA4 gene
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Iveric Bio’s Therapy Slows Retinal Degeneration in Phase 2b Trial for Dry AMD
Research NewsZimura inhibits a complement protein known as C5, a component of the immune system that, when overactive, can cause retinal degeneration.
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Visionary Artist Elijah Overcomes All Obstacles
Beacon StoriesElijah has always had an artist mind, and he hasn’t let his diagnosis with Stargardt disease hold him back from his passion for creating art.
