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Accelerating Treatments for IRDs: 2020 March Progress Report
The Foundation Fighting Blindness is pleased to provide a video recording and full transcript of the Accelerating Treatments for IRDs: 2020 March Progress Report. The presentation took place on March 27, 2020.
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Interim Results Released for USH2A RNA Therapy Clinical Trial
Research NewsSuggestions of efficacy observed in 25 percent of participants receiving the treatment
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Foundation News
The Foundation Fighting Blindness is closely monitoring the COVID-19 situation and its impact on the IRD community.
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10 Things to Know Before You Fall Victim to a Retinal Stem Cell Scam
Research NewsAn article by David Gamm, MD, PhD, a Foundation-funded researcher at the University of Wisconsin-Madison
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A diagnosis of an inherited retinal disease (IRD) can be challenging for both patients and their doctors. But the Foundation can help eye care professionals provide resources and information to enable patients to better understand and manage their conditions, and potentially qualify for clinical trials of emerging therapies.
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No Limits for Determined Paralympian Triathlete
Beacon StoriesParalympian Elizabeth Baker says that Stargardt disease has made her a tougher person.
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Seeing hope: Ledyard nonprofit focuses on rare retinal diseases
NewsSofia Priebe, 17, is legally blind. Her parents have started a nonprofit, Sofia Sees Hope, to raise funds for research into and awareness of the rare genetic disease Leber congenital amaurosis, which causes her blindness.
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Beacon Stories My Retina Tracker Patient Stories
Braydon was diagnosed with an inherited retinal disease at only two years old. Eight years later, after his mom enrolled him in the My Retina Tracker® Program, Braydon learned his disease was LCA.
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First Patient Receives Emerging CRISPR Therapy in Clinical Trial for LCA 10
Research NewsFirst time emerging CRISPR therapy administered inside the human body
