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  • Quarterly Vision Webinar – Mental Health | May 17, 2025

    • May 17, 2025
    • 12:00 p.m. (EDT)
    • Virtual

    Join us on Saturday, May 17, at noon Eastern time for a comprehensive webinar covering the emotional challenges vision loss can bring to our community.

    Well-Being

  • Wisconsin VisionWalk

    • May 17, 2025
    • 10:00 a.m.
    • 400 Estabrook Pkwy, Shorewood, WI

    Since its inception in the Spring of 2006, VisionWalk has raised over $71 million to fund sight-saving research. Join your VisionWalk community! Together, we step closer to fighting blinding diseases.

    VisionWalk

  • Orange County VisionWalk

    • May 17, 2025
    • 9:00 a.m. (PDT)
    • 16801 Euclid Street, Fountain Valley, CA 92708

    Since its inception in the Spring of 2006, VisionWalk has raised over $71 million to fund sight-saving research. Join your VisionWalk community! Together, we step closer to fighting blinding diseases.

    VisionWalk

  • Colorado Vision Connection Spring, 2025

    • May 17, 2025
    • 8:00 a.m. - 11:30 a.m. (MDT)
    • 1675 Aurora Ct, Aurora, CO 80045

    Updates on inherited retinal diseases, age-related macular degeneration, and the whole eye transplant program.

    Community Event

  • Charlotte GameChangers: Score for Sight

    • May 15, 2025
    • 6:30 p.m.
    • 8024 Savoy Corporate Dr, Charlotte, NC 28273

    Enjoy playing golf at Top Golf Southwest, a delicious dinner and drinks, and an exciting silent auction!

    Community Event

  • New York Night for Sight

    • May 15, 2025
    • 6:00 p.m. (EST)
    • 409 E 59th St, New York, NY 10022

    Join Us for Night for Sight in NYC!

    Community Event

  • May 9, 2025

    ARVO 2025 Highlight: Beacon Reports Encouraging Results for Second Eyes Dosed in Clinical Trial for XLRP Gene Therapy

    The company is currently enrolling patients in its Phase 2/3 VISTA Clinical Trial.

    News

  • May 8, 2025

    Eye on the Cure Podcast | Episode 85: Cindy Elden

    Cindy Elden talks about her journey with Usher syndrome type 3 (USH3), the decades-long work and persistence of her non-profit, and the clinical trial it launched for an USH3 small molecule therapy.

    Eye on the Cure

  • May 5, 2025

    Seeing Beyond GA

    Rob Howden’s journey with AMD and GA truly shows that individuals can take control of their vision loss journey and find strength within their community. His story emphasizes the importance of proactive treatment, taking care of your mental health, and the invaluable support of friends and neighbors.

    Beacon Stories Wellness

  • May 2, 2025

    Living With Usher Syndrome: Practicing, Prioritizing, and Protecting Your Mental Health

    In this deeply personal reflection, Rebecca Alexander, LCSW-R, MPH, RYT, shares the emotional journey of living with Usher syndrome—not as a single moment of diagnosis, but as an ongoing evolution of identity, loss, and resilience. Drawing from her experience as a psychotherapist, she offers powerful insights and coping tools for navigating grief, preserving connection, and embracing the full complexity of the human experience.

    Living and Thriving Wellness