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Foundation Fighting Blindness Clinical Consortium
The Foundation Fighting Blindness Clinical Consortium is a not-for-profit alliance of retinal disease specialists and geneticists committed to accelerating development of efficacious treatments for inherited retinal diseases (IRDs).
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Apr 8, 2024
Ocugen to Launch Phase 3 Clinical Trial of Modifier Gene Therapy for RP
Research NewsThe emerging treatment is designed to work independent of the patient’s mutated gene.
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Apr 8, 2024
What Does “Blindness” Really Mean?
Beacon StoriesJenny Schisler has retinitis pigmentosa. Jenny wants to spread awareness of what having a visual impairment really means to her and others affected by retinal degenerative diseases.
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Mar 27, 2024
Nanoscope Plans to Apply for FDA Approval for its Optogenetic Therapy
Research NewsThe company reported positive two-year results for its Phase 2 clinical trial of MCO-010.
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Mar 26, 2024
Opus Reports Vision Improvements for Patients in LCA5 Gene Therapy Clinical Trial
Research NewsThe company plans to administer a higher dose of the emerging gene therapy to the next group of patients.
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Mar 25, 2024
Foundation NewsCollaboration will add a new multi-gene cohort of patients living with inherited retinal diseases. Data insights from the new study cohort will inform the future clinical trial design for BlueRock’s pipeline of cell therapies for treating blindness.
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Mar 25, 2024
Beacon StoriesAdopted into a musical family, Miles Hoyt picked up a guitar at just four years old, and he hasn’t stopped playing since. Now Miles, who has Stargardt disease, and his parents are using music to bring their community together to raise funds for blinding diseases with their Raising Our Sights fundraiser, Smiles for Miles.
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Recordings from the 2024 Stargardt's Summit
The Stargardt’s Summit, made possible with the support from Alkeus Pharmaceuticals, was hosted by the Foundation Fighting Blindness, Prevent Blindness, the Carroll Center for the Blind, and The Blind Life. This virtual summit enabled participants to learn about the newest Stargardt research, explore adaptive living resources, hear impactful patient stories, and connect with others going through similar journeys.
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Get involved with the Foundation Fighting Blindness.
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Mar 11, 2024
Influencing Positivity for the Disabled Community
Beacon StoriesContent creator and social media influencer Stephanie Renberg uses her platforms to raise awareness for blindness and disabilities in hopes that her openness about her Stargardt disease will contribute to a more inclusive and understanding world.