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Beacon Stories
From stargazing to bird watching, Michael has been an enthusiast of all things science from the age of 12. When Michael was diagnosed with retinitis pigmentosa at 30 years old, he knew he wasn’t going to give up his dream of becoming a record-setting birder. In his own words, Michael shares how he’s overcome his vision loss and continued to pursue his birding passions with “birding-by-ear.”
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Foundation Fighting Blindness to Host National Virtual VisionWalk
Foundation NewsThe Spring Virtual VisionWalk on June 12th will raise awareness and fund research finding treatments and cures for blinding retinal diseases.
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Investigators Report Partial Vision Restoration for One Patient in Optogenetic Therapy Trial
Research NewsThe gene-agnostic approach is designed to restore some vision to people with advanced vision loss
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Girl Scouts are Changing the World One Crosswalk at a Time
Beacon StoriesInspired by their troop leader diagnosed with Usher syndrome, Girl Scout Troop 1673 is hoping to change the world, one crosswalk at a time, with their Paint It Yellow challenge.
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Contact Your Member in the House
Sample letter for contacting your Member in the House
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New Bipartisan Legislation Introduced to Boost Clinical Research for Treatments and Cures
Research NewsThe bill would provide loans to therapy developers ready to launch clinical trials for a broad range of conditions including eye diseases.
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Foundation Fighting Blindness Applauds Introduction of LOANS for Biomedical Research Act
Foundation NewsLegislation provides innovative financing for clinical trials stalled by COVID-19 pandemic.
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The bill would provide loans to therapy developers ready to launch clinical trials for a broad range of conditions including retinal and eye diseases.
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Foundation News
The free webinar for eye care professionals, on June 21, will feature some of the intriguing and innovative research efforts underway for inherited retinal diseases and AMD.
An overview of the Foundation’s no-cost genetic testing program will also be presented.
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In the Press
Uses novel, mutation agnostic optogenetics approach to restore vision in underserved forms of blindness. Company backed by leading life science investors including Octagon Capital, Samsara BioCapital and Casdin Capital, along with founding investors Atlas Venture, Mission BioCapital and Foundation Fighting Blindness.
