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Displaying 11–20 of 62 resources results
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February 14, 1941 – March 15, 2020
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Braydon was diagnosed with an inherited retinal disease at only two years old. Eight years later, after his mom enrolled him in the My Retina Tracker® Program, Braydon learned his disease was LCA.
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This is a father’s story on the night that changed his and his family’s life forever.
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“If someone like me, a woman with retinitis pigmentosa and a part-time job, can leave a legacy gift, you can too! And trust me, it feels really, really good to know that part of your life’s work will contribute to something meaningful for future generations.”
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“I decided to include the Foundation in my estate plans,” Anne explained, “so that if the time ever comes when my grandchildren, or anyone else’s, experience vision loss, the scientists will have figured out how to help them.”
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Al Linde “Keeps on Rolling” with Macular Degeneration
Al Linde has learned to “just roll with it” throughout his life to overcome many challenges.
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Charlie Kramer: Singing in the Dark
26-year-old Charlie Kramer is well-known as a professional song leader, songwriter and spiritual leader. But until recently, Charlie didn’t want to openly share his journey with vision loss.
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Ashlyn Experiences Joy in Day-To-Day Life After Sight Is Restored
Ashlyn’s vision was restored following her treatment with the LUXTURNA gene therapy.
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Dr. Marciello doesn’t let a Stargardt disease diagnosis get in the way of his twin passions: medicine and baseball.
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Visionary Artist Elijah Overcomes All Obstacles
Elijah has always had an artist mind, and he hasn’t let his diagnosis with Stargardt disease hold him back from his passion for creating art.
