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Displaying 11–20 of 28 resources results
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People with retinal disease describe their experiences “not looking blind.”
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Changing Someone’s Life: A New Video Emphasizes the Need to Support FFB’s Mission
Allison Corona is one of 40 people with Leber congenital amaurosis who’ve benefitted from a gene therapy clinical trial.
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Ready for the Spotlight: Rebecca Alexander Shares Her Story of Living with Usher Syndrome
“…the best thing is to reach out and network, and access all the resources. The more invested you are in what’s out there, the more you get back.”
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Lighting a Candle: The Author of a New Memoir Shares the Highs and Lows of Vision Loss
Nicole Simpson, author of “Now I See You,” shares her experience with retinitis pigmentosa.
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Flight4Sight: A Man with Usher Syndrome Travels Around the Globe
There’s nothing like a sense of urgency to turn what seems like a crazy idea into reality.
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Foundation Chairman, Gordon Gund, Interviewed on Forbes.com
The driving force behind the Foundation’s considerable advances covers those, as well as other compelling subjects, during a27-minute Q&A.
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An FFB Board Member’s Perspective on Her Experience with Acupuncture
Moira Shea describes her experience with acupuncture.
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Just How Tricky Halloween Can Be
For those with night blindness, a symptom of many retinal diseases, most notably retinitis pigmentosa, or RP, navigating a trick-or-treating throng can be, well, a nightmare.
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Alice Bartlett – Back on That Horse
His name is Battle. He’s an Arabian, stands more than 15 hands (or 5 feet) tall and weighs 1,000 pounds. He’s been with Alice Bartlett since his birth 26 years ago, and she’s been riding him since he was 2.
Alice, by the way, is legally blind.
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Taking Their Story of Vision Loss on the Road
Rollie and Sandie Purvis, parents of two sons with choroideremia, describe their sons’ film project, “Driving Blind.”
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