Displaying 111–120 of 129 resources results
Apr 15, 2015
An interview with Louis Posen, record label founder and retinitis pigmentosa patient.
Mar 20, 2015
People with retinal disease describe their experiences “not looking blind.”
Oct 14, 2014
Changing Someone’s Life: A New Video Emphasizes the Need to Support FFB’s Mission
Allison Corona is one of 40 people with Leber congenital amaurosis who’ve benefitted from a gene therapy clinical trial.
Sep 10, 2014
Ready for the Spotlight: Rebecca Alexander Shares Her Story of Living with Usher Syndrome
“…the best thing is to reach out and network, and access all the resources. The more invested you are in what’s out there, the more you get back.”
Jun 26, 2014
Lighting a Candle: The Author of a New Memoir Shares the Highs and Lows of Vision Loss
Nicole Simpson, author of “Now I See You,” shares her experience with retinitis pigmentosa.
Apr 21, 2014
Flight4Sight: A Man with Usher Syndrome Travels Around the Globe
There’s nothing like a sense of urgency to turn what seems like a crazy idea into reality.
Dec 12, 2013
Foundation Chairman, Gordon Gund, Interviewed on Forbes.com
The driving force behind the Foundation’s considerable advances covers those, as well as other compelling subjects, during a 27-minute Q&A.
Dec 2, 2013
An FFB Board Member’s Perspective on Her Experience with Acupuncture
Moira Shea describes her experience with acupuncture.
Oct 20, 2013
Just How Tricky Halloween Can Be
For those with night blindness, a symptom of many retinal diseases, most notably retinitis pigmentosa, or RP, navigating a trick-or-treating throng can be, well, a nightmare.
Sep 6, 2013
Alice Bartlett – Back on That Horse
His name is Battle. He’s an Arabian, stands more than 15 hands (or 5 feet) tall and weighs 1,000 pounds. He’s been with Alice Bartlett since his birth 26 years ago, and she’s been riding him since he was 2.
Alice, by the way, is legally blind.