Search
Selected Filter
Displaying 81–90 of 229 diseases results
-
Foundation News
The four-year study will inform clinical trial design for emerging USH3 therapies.
-
Eye on the Cure Podcast | Episode 71: Dr. Leonide Saad
Eye on the CureDr. Saad discusses an emerging therapy for Stargardt disease that has performed well in clinical trials.
-
A Para Triathlete's Journey With Stargardt
Beacon StoriesThis exclusive Beacon Story podcast features WROC’s Adam Chodak and professional Para triathlete Deb Chucoski as they discuss living with Stargardt disease and the amazing achievements of those who refuse to let it define them.
-
Woodburning Gives DeafBlind Artist Purpose
Beacon StoriesKrista Webb has embraced woodburning as a creative outlet to cope with her progressive vision loss due to Usher syndrome. And Krista has built a supportive community on Instagram, where she shares her art and advocates for the blindness community.
-
Eye on the Cure Podcast | Episode 70: Karen Petrou
Eye on the CureKaren Petrou, the new board chair at the Foundation, talks to host Ben Shaberman about her vision for the Foundation moving forward. Karen has been an active director on the Foundation’s board for nearly two decades. She is co-founder and managing partner of Federal Financial Analytics, a firm providing analytical and advisory services on legislative, regulatory, and public-policy issues affecting financial services companies. Karen has RP and lives in Washington, DC, with her guide dog, Ike.
-
Barry Smith and Emily Harding Smith
Beacon Stories“I have spent a lifetime attempting to prove what I can do, which has allowed Emily and I to be in a place where we can help. Please consider joining us.“
-
Blind Guy Biking: Enduring the Trails for Stargardt
Beacon Stories Fundraiser Success StoriesChris Smith, a mountain bike enthusiast who was diagnosed with Stargardt disease, transformed his bike into a lifeline after losing his driver’s license. Now, 15 years later, he’s tackling the grueling 2,745-mile Tour Divide race while raising funds for the Foundation Fighting Blindness.
-
Capturing Life Through A Deaf-Blind Lens
Beacon StoriesBrian Bossert has turned his passion for photography into a successful career. As a commercial photographer and videographer living with Usher syndrome, Brian has a unique perspective and is using his creativity to inspire others as he shares his vision through photos and videos.
-
Beacon Stories
In her almost eighth decade of life, Toni Mehler has learned to adapt to the unknown, and she draws from those experiences to embrace her diagnosis of AMD.
-
Antabuse Moves into Clinical Trial for People with RP
Research NewsResearchers believe the FDA-approved drug can reduce the hyperactivity of ganglion cells to improve vision.
.png)
