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Displaying 41–50 of 201 diseases results
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Share Your Vision: Heather Edwards
Beacon StoriesHeather Edwards has turned her personal journey with cone-rod dystrophy into a mission to support others facing similar challenges. Despite facing difficulties during her youth, Heather now uses her experiences to advocate for awareness and support for blinding diseases, emphasizing that blindness is a spectrum and each person’s experience is uniquely valuable.
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Safety Clinical Trial Launched for Usher Syndrome 3 Drug
Research NewsResearchers hope the molecule will slow the vision and hearing loss associated with USH3.
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Soaring as a Visionary Leader at Southwest
Beacon StoriesJames Ashworth, Vice President of Customer Care at Southwest Airlines, has dedicated his career to the airline industry and his advocacy for the visually impaired, driven by his personal experience with rod-cone dystrophy. His leadership and commitment to supporting the blind and visually impaired community have led to significant contributions, including employment initiatives and technological advancements to aid those with vision loss.
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Vision: A Memoir of Blindness and Justice — A New York Times Editor’s Pick
Foundation News“Tatel’s humility and tenacity shine. The result is a stirring reflection on an extraordinary life,” Publishers Weekly
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4DMT Planning Phase 3 Clinical Trial for Wet AMD Gene Therapy
Research NewsKnown as 4D-150, the wet AMD gene therapy performed well in a Phase 2b clinical trial.
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Eye on the Cure Podcast | Episode 73: Dr. Zuhal Butuner
Eye on the CureDr. Zuhal Butuner talks about her company’s two emerging RNA therapies for LCA10 and USH2A.
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AAVantgarde Bio’s Dual-Vector USH1B Gene Therapy Moves into Phase 1/2 Clinical Trial
Research NewsThe trial is the first ever for a dual AAV gene therapy delivered to the retina.
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Research News
The Phase 3 trial is expected to begin in Q1 2025
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Perseverance of a Six-Time Paralympian
Beacon StoriesAs a six-time goalball Paralympian, Lisa has turned her progressive vision loss into a powerful source of strength and inspiration. Through her incredible journey—overcoming barriers, achieving five Paralympic medals, and becoming a passionate disabilities advocate—Lisa exemplifies how embracing life’s challenges can lead to extraordinary success and personal growth.
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Lead With Luna: Meredyth’s Journey With Her Guide Dog
Beacon StoriesIn honor of National Dog Day, we’re celebrating the work of guide dogs and raising awareness about the importance of guide dog services by sharing Meredyth’s story. Her guide dog, Luna, has greatly improved her independence and quality of life, showcasing the significant benefits of guide dog services for those who are blind or have low vision.
