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Displaying 191–200 of 227 diseases results
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Beacon Stories
Carolyn is a business professional and beauty industry leader in Raleigh, North Carolina. In spite of her diagnosis with retinitis pigmentosa, Carolyn pursues exactly what she wants and knows what she is purposed to do in her life.
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Foundation News
The Foundation Fighting Blindness is closely monitoring the COVID-19 situation and its impact on the IRD community.
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No Limits for Determined Paralympian Triathlete
Beacon StoriesParalympian Elizabeth Baker says that Stargardt disease has made her a tougher person.
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Seeing hope: Ledyard nonprofit focuses on rare retinal diseases
NewsSofia Priebe, 17, is legally blind. Her parents have started a nonprofit, Sofia Sees Hope, to raise funds for research into and awareness of the rare genetic disease Leber congenital amaurosis, which causes her blindness.
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Beacon Stories My Retina Tracker Patient Stories
Braydon was diagnosed with an inherited retinal disease at only two years old. Eight years later, after his mom enrolled him in the My Retina Tracker® Program, Braydon learned his disease was LCA.
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In the Press
People with disabilities are no different from anyone else. We all have strengths and challenges, and we all seek to be fully engaged in society. Treating blind people differently, either as incapable of conducting everyday tasks in life, or conversely, acting as though our ability to conduct even the most mundane chore is remarkable can be discouraging.
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Foundation News
My Retina Tracker Program is the highest volume IRD genetic testing program in the U.S.
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Al Linde “Keeps on Rolling” with Macular Degeneration
Beacon StoriesAl Linde has learned to “just roll with it” throughout his life to overcome many challenges.
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Ashlyn Experiences Joy in Day-To-Day Life After Sight Is Restored
Beacon StoriesAshlyn’s vision was restored following her treatment with the LUXTURNA gene therapy.
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Foundation News
Known as Pro-EYS, the study will help researchers design clinical trials for potential therapies
