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Displaying 601–610 of 692 for “retinal diseases”
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From Hiding to Helping: How Cory Turned Vision Loss Into a Life With No Limits
Beacon StoriesAfter years of hiding his vision loss, Cory Rainford now uses his voice to help others navigate life with choroideremia. As his blinding disease progressed, he worked hard to keep it invisible, even leaving his dream job. Today, through his YouTube channel Legally Blind No Limits, Cory shares honest, humorous videos about adapting and finding community, showing others that life with vision loss can still be full of possibilities.
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Octant Bio Begins Clinical Testing Oral Treatment for Rhodopsin-Related Retinitis Pigmentosa
Research NewsFirst-of-its-kind small molecule therapy targets protein misfolding at the root of RHO-adRP
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Hope Is Right Around the Corner
Beacon StoriesRosana was diagnosed with age-related macular degeneration (AMD) at 43, which would eventually cost her a pilot’s license, a driver’s license, and the independence she had always defined herself by. Rather than retreat, she adapted, moving closer to the beach, riding tandem bikes, and finding community through the Foundation Fighting Blindness. Today, she channels her experience with AMD into advocacy, driven by the belief that hope—and continued progress toward treatments and cures—are very much within reach.
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Beacon Therapeutics Launches Clinical Trial for Bilateral Administration of XLRP Gene Therapy
Research NewsThe company has also fully enrolled the Phase 2/3 VISTA clinical trial for its XLRP gene therapy.
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Beacon Stories
Runner, storyteller, and community builder — Eavan O’Neill turned her Stargardt disease diagnosis into a mission to connect and uplift others through her own lived experiences. Through Brightside, she’s redefining what it means to live boldly and authentically with vision loss.
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Eye on the Cure Podcast | Episode 96: Dr. Deniz Dalkara
Eye on the CureDr. Dalkara is a research director at INSERM in France and works on therapies for people with retinitis pigmentosa (RP).
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My Journey with Retinitis Pigmentosa and the Foundation Fighting Blindness
Beacon StoriesZach was diagnosed with Bardet-Biedl syndrome (BBS) through genetic testing from the Foundation’s My Retina Tracker® Program. Today, he is looking ahead with purpose — supporting research through the Foundation, planning for his future, and encouraging others to do the same.
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Answers at Last: How Genetic Testing Revealed Zach’s Bardet-Biedl Syndrome
Beacon StoriesFor years, Zach Lovell lived with vision loss that didn’t have a complete explanation. Genetic testing through the Foundation’s My Retina Tracker® Program revealed he had Bardet-Biedl syndrome (BBS), finally connecting decades of health challenges and bringing long-awaited clarity to him and his family. Today, Zach is looking ahead with purpose — supporting research through the Foundation, planning for his future, and encouraging others to do the same.
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Beacon Stories
Maverick, a determined and adventurous 11-year-old, was diagnosed with X-linked retinoschisis (XLRS) at age six, which led his family to find support and resources through the Foundation Fighting Blindness. Since his diagnosis, Mav continues to pursue his passions in sports and outdoor activities, inspiring his family with his resilience and positive attitude.
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Postdoctoral Fellowship Award guidelines and application details.
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