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Displaying 571–580 of 659 for “retinal diseases”
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Eye on the Cure Podcast | Episode 96: Dr. Deniz Dalkara
Eye on the CureDr. Dalkara is a research director at INSERM in France and works on therapies for people with retinitis pigmentosa (RP).
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My Journey with Retinitis Pigmentosa and the Foundation Fighting Blindness
Beacon StoriesZach was diagnosed with Bardet-Biedl syndrome (BBS) through genetic testing from the Foundation’s My Retina Tracker® Program. Today, he is looking ahead with purpose — supporting research through the Foundation, planning for his future, and encouraging others to do the same.
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Answers at Last: How Genetic Testing Revealed Zach’s Bardet-Biedl Syndrome
Beacon StoriesFor years, Zach Lovell lived with vision loss that didn’t have a complete explanation. Genetic testing through the Foundation’s My Retina Tracker® Program revealed he had Bardet-Biedl syndrome (BBS), finally connecting decades of health challenges and bringing long-awaited clarity to him and his family. Today, Zach is looking ahead with purpose — supporting research through the Foundation, planning for his future, and encouraging others to do the same.
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Beacon Stories
Maverick, a determined and adventurous 11-year-old, was diagnosed with X-linked retinoschisis (XLRS) at age six, which led his family to find support and resources through the Foundation Fighting Blindness. Since his diagnosis, Mav continues to pursue his passions in sports and outdoor activities, inspiring his family with his resilience and positive attitude.
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Postdoctoral Fellowship Award guidelines and application details.
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Eye on the Cure Podcast | Episode 90: Dr. Christina Ohnsman
Eye on the CureDr. Christina Ohnsman talks about Tern Therapeutics, a start-up company she co-founded to develop gene therapies for Batten disease and potentially other conditions.
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Shifting Perspectives—One Video at a Time
Beacon StoriesNatasha Caudill is a content creator and disability advocate who uses her platform of over 1.3 million TikTok followers to shift perceptions about blindness and achromatopsia. Through candid and educational videos, she invites others to experience the world through her eyes, literally in black and white. Her content reminds us that disability isn’t a limitation but simply a different and equally valuable way of experiencing the world.
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Eye on the Cure Podcast | Episode 88: Richard Small
Eye on the CureRichard Small, CEO of Neurotech, talks to host Ben Shaberman about ENCELTO™, the first and only FDA-approved treatment for adults with idiopathic Macular Telangiectasia Type 2 (MacTel).
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VISIONS 2026: United in Vision Schedule
The United in Vision 2026 conference unites two prestigious events—the Foundation Fighting Blindness VISIONS conference and the Retina International World Congress—into one extraordinary global gathering. Scheduled from Wednesday, June 10 to Saturday, June 13, 2026, at the Fort Worth Convention Center in Fort Worth, Texas,
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Well-prepared estate plan brings peace of mind—knowing your loved ones are cared for and your wishes will be honored. It also offers a unique opportunity to leave a lasting impact on a cause important to you.
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