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Displaying 411–420 of 737 for “retinitis clinical trial”
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Inspired by Progress in Usher Syndrome Research
Research NewsMark Pennesi, M.D., Ph.D., a Foundation-funded clinical researcher at the Casey Eye Institute, discusses the first human study of gene therapy for Usher syndrome type 1B.
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The Invaluable Role of the Retinal Specialist
Research NewsUntil therapies become readily available, it’s important for patients and families to establish an ongoing relationship with a retinal specialist familiar with retinal degenerations.
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Foundation News
The May 14 event will convene leaders across industries to raise funds that advance treatments and cures for blinding diseases.
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Support your clients’ charitable giving with the Foundation Fighting Blindness—where tax-smart donations fund breakthrough medical research.
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Beacon Stories
Maverick, a determined and adventurous 11-year-old, was diagnosed with X-linked retinoschisis (XLRS) at age six, which led his family to find support and resources through the Foundation Fighting Blindness. Since his diagnosis, Mav continues to pursue his passions in sports and outdoor activities, inspiring his family with his resilience and positive attitude.
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Eye on the Cure Podcast | Episode 90: Dr. Christina Ohnsman
Eye on the CureDr. Christina Ohnsman talks about Tern Therapeutics, a start-up company she co-founded to develop gene therapies for Batten disease and potentially other conditions.
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Eye on the Cure Podcast | Episode 87: Dr. Philip Beales
Eye on the CureDr. Philip Beales, a co-founder of Axovia Therapeutics, talks about Bardet Biedl syndrome.
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Foundation News
The Foundation Fighting Blindness develops strategic partnership with Alma, a network of 25,000 mental health professionals dedicated to simplifying access to high-quality, affordable mental healthcare.
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Building Bonds: Joy and Representation in Legos
Beacon StoriesIn her own words, Chloe shares how her bond with her brother Elliot has grown stronger over the years through their shared love of building Legos. Since Elliot’s diagnosis with Stargardt disease, he has faced significant vision loss, but they discovered accessible online Lego instructions, allowing them to continue their cherished hobby. Chloe hopes for a more accessible and understanding world where Elliot and others with vision loss can thrive.
