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Displaying 161–170 of 543 for “Retinitis pigmentosa”
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Eye on the Cure Podcast | Episode 98: Jonathan & Josh Steinberg
Eye on the CureJosh Steinberg and his father, Jon, talk with host Ben Shaberman about their close-knit family’s journey with Josh’s vision loss.
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Beacon Therapeutics Launches Clinical Trial for Bilateral Administration of XLRP Gene Therapy
Research NewsThe company has also fully enrolled the Phase 2/3 VISTA clinical trial for its XLRP gene therapy.
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Excerpt from Never Seen the Stars by Kate Korsh
Invisible DisabilityRead an excerpt from the novel, Never Seen the Stars, where Hattie reflects on living with retinitis pigmentosa, navigating family dynamics, and finding hope in her choices.
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Answers at Last: How Genetic Testing Revealed Zach’s Bardet-Biedl Syndrome
Beacon StoriesFor years, Zach Lovell lived with vision loss that didn’t have a complete explanation. Genetic testing through the Foundation’s My Retina Tracker® Program revealed he had Bardet-Biedl syndrome (BBS), finally connecting decades of health challenges and bringing long-awaited clarity to him and his family. Today, Zach is looking ahead with purpose — supporting research through the Foundation, planning for his future, and encouraging others to do the same.
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Eye on the Cure Podcast | Episode 94: Dr. Victoria Claire
Eye on the CureDr. Claire is a blind professional artist in contemporary sculpture.
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Vision Science Explained Through Animated Videos
This educational series aims to educate and inform viewers by simplifying science – helping people understand topics like blinding diseases, genetics, and clinical trials, without requiring advanced background knowledge.
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SparingVision Launches Clinical Trial for Therapy to Re-Activate Dormant Cones in Advanced RP
Research NewsThe approach may provide better visual acuity than current optogenetic therapies in clinical trials.
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Films & Documentaries Showcase
Celebrating the powerful stories of individuals in the blind and low vision community through the art of film.
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Leber Congenital Amaurosis Research Advances
Research NewsRecent developments in research on Leber congenital amaurosis.
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