Stories
Displaying 71–80 of 177
-
Rewriting the Narrative as the First Black Deaf-Blind Journalist
Beacon StoriesSteven McCoy has made history as the first black deaf-blind journalist in the world, as he was recently diagnosed with Usher syndrome after a lifelong struggle with hearing loss. Equipped with a passion for storytelling and advocacy, he now uses his voice to create lasting change within the entertainment industry and deaf-blind community.
-
Birding Blind: Identifying Birds by Song
Beacon StoriesMartha Steele has been birding for over 30 years, but the way in which she birds has changed over time. Martha has Usher syndrome, with her central vision declining rapidly in the early 2000s and receiving her first cochlear implant in 2010. Now she birds entirely by ear and has learned the songs of about 150 bird species.
-
Retinal Research Community Loses Beloved Pioneer Sam Jacobson
Beacon StoriesHis many contributions included pivotal work that led to LUXTURNA
-
Fearless Sister Duo Finding Hope
Beacon StoriesApril LuFriu and Melissa Escobio are sisters and best friends who do just about everything together, including having retinitis pigmentosa (RP).
-
Resourceful Advocate for Research
Beacon StoriesManorthia was diagnosed with retinitis pigmentosa (RP) when she was 22 years old but didn’t start experiencing considerable vision loss until years later. Once she began to notice her vision deteriorating more rapidly, she reached out to the Foundation Fighting Blindness to get involved with the blindness community.
-
Charlie Kramer: Life Coach for the Disabled
Beacon StoriesRetinitis pigmentosa (RP) runs in Charlie Kramer’s family, so it wasn’t a surprise when he was diagnosed at a young age. But now, at 29 years old, Charlie is following his passion for helping and empowering others as a full-time life coach for those with disabilities.
-
SeeShore Fest Fundraiser Success
Beacon StoriesHeather Napolitano started her DIY fundraiser, SeeShore Fest, seven years ago. The event has now raised over $109,000 to fund research finding treatments and cures for blinding diseases.
-
Youngest U.S. Blind Golfer Heading to the 2022 Vision Cup
Beacon StoriesTyler Cashman is one of six U.S. team members that have been selected to participate in the upcoming 2022 Vision Cup, an international golf competition for the blind hosted by the United States Blind Golf Association (USBGA), taking place on September 19-22, 2022.
-
Decades of Dedication Fighting for His Family and Himself
Beacon Stories My Retina Tracker Patient StoriesDan Day is one of over ten people in his family, spanning six generations, affected with retinitis pigmentosa (RP). So to “get off the sidelines and join the fight” for himself and his family, Dan has dedicated over 25 years of service to the Foundation Fighting Blindness.
-
Discovering Confidence Through Vulnerability
Beacon StoriesFashion and Lifestyle Blogger Lindi Goff is sharing her authentic self by being vulnerable about her journey with Stargardt disease.
