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Displaying 71–80 of 582 results for “retinitis pigmentosa”
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Legally Blind Artist Paul Castle Expresses His Story through Art
Beacon StoriesPaul Castle was diagnosed with X-linked retinitis pigmentosa at the age of 16, but continued to follow his passion for art. Now Paul is a full-time artist and donates 5 percent of his art sales to the Foundation.
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An FFB Board Member’s Perspective on Her Experience with Acupuncture
Beacon StoriesMoira Shea describes her experience with acupuncture.
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Fundraiser Success Stories
Lindsey Blankenship, president of the Foundation Fighting Blindness Colorado Chapter, has created a one-of-a-kind Raising Our Sights Event. Wine for a Cure aims to spread awareness and fundraise on behalf of the Foundation Fighting Blindness with two signature wines from the Oregon Winery, Stoller Family Estates. The featured wines are a Chardonnay named “Variant” and a Pinot Noir named “Pigmentosa.”
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My Retina Tracker Genetic Testing Program
The Foundation Fighting Blindness, in partnership with PreventionGenetics and InformedDNA®, offers an open access, no-cost genetic testing program called the My Retina Tracker® Genetic Testing Program.
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Nanoscope’s investigational RP treatment MOGENRY advances toward FDA approval
Research NewsOne-time injection could treat RP patients regardless of underlying genetic mutation
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Invisible Disability
C.J. Rodriguez opens up about life with retinitis pigmentosa and showcasing his experience through characters in his book, Bloom of the Huntresses.
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Finding the Light Within: How Joslyn Turned Vision Loss into Purpose
Beacon StoriesJoslyn Marquez spent years searching for answers before being diagnosed with retinitis pigmentosa at the age of 16. Rather than allowing vision loss to define her, she transformed her journey into a source of purpose, community and empowerment.
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The Clinical Trial That Opened His World
Beacon StoriesAfter decades of adapting to vision loss from retinitis pigmentosa (RP), Manny Fernandez became one of the first people to receive an experimental gene therapy in a clinical trial. The experience not only restored a small part of his peripheral vision but also renewed his hope for the future and inspired him to encourage others to consider clinical trials, too.
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Beacon Stories
Tamar Bresge is an artist, writer, and educator living with retinitis pigmentosa (RP) due to Usher syndrome. She reflects on her vision loss journey from hiding her diagnosis to embracing it as an inseparable part of her identity — and how her work in art, writing, and teaching has become a way to create the visibility and connection she once needed herself.
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A Legacy of Strength, Adaptability, and Generosity: Richard and Elizabeth Kamis
Beacon StoriesRichard and Elizabeth built a life rooted in resilience, service, and generosity, with Richard’s experience living with retinitis pigmentosa shaping their shared purpose. From breaking barriers in education to helping others, their impact continues to help advance research for generations to come.
