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Displaying 621–630 of 851 results for “vision connection”
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Beacon Stories
At only three months old, Brendon was diagnosed with x-linked juvenile retinoschisis (XLRS). But with several other family members also with XLRS, Brendon knew he could still follow his passions for science and space. Now 22, Brendon is an Aerospace Engineer, starting a PhD program at UCF, and was recently awarded the prestigious National Science Foundation’s Graduate Research Fellowship.
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Foundation News
This December 16th exclusive in-person performance and conversation with the Blind Boys of Alabama will raise awareness for blinding diseases.
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In the Press
Raffaella Toso, PhD, joins as VP Corporate Development & Alliance Management and Florence Paliargues appointed as VP Portfolio Project Management.
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Beacon Stories
At the age of five, Livie was diagnosed with LCA but her doctor immediately told her parents that clinical trials were underway and that Livie could soon be eligible for treatment. Not long after, they got a phone call from Spark Therapeutics and Livie received LUXTURNA®. Now eight, Livie’s confidence is at an all-time high with her “new eyes.”
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Beacon Stories
Michael was matched with his first guide dog, Geo, a yellow Labrador retriever, in March 2020, two years after he applied with Guiding Eyes for the Blind. Michael and Geo now have a relationship unlike any other.
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MeiraGTx and Janssen Recruiting for Phase 3 XLRP Gene Therapy Clinical Trial
Research NewsVisit www.LUMEOSstudy.com for more information about trial
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In the Press
Initial programs will focus on treatments for rare pediatric blinding conditions. Company formed to advance the work of scientific cofounders Dr. Jean Bennett, Junwei Sun and Dr. Eric Pierce.
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Foundation Fighting Blindness to Host National Virtual VisionWalk
Foundation NewsThe Spring Virtual VisionWalk on June 12th will raise awareness and fund research finding treatments and cures for blinding retinal diseases.
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A Mother’s Perseverance for Her Son
Beacon StoriesAfter learning Preston needed to wear an eye patch, his mom Carmen wanted to find resources and support on eye patching, but she couldn’t pinpoint anything on the internet pertaining to children’s books about her son’s specific conditions. That’s when Carmen decided to write a children’s book to educate children and parents on why someone wears an eye patch.
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Foundation Invests $5.5 Million in Seven New Translational Research Projects
Research NewsProjects target a variety of conditions including: age-related macular degeneration, Stargardt disease, retinitis pigmentosa, and Usher syndrome type 3A
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