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Lulie Gund: Beloved Philanthropist, Role Model and Confidant
Beacon StoriesLlura Gund, often referred to as Lulie, was known for her infectious kind smile and love of life.
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Don’t Let Others Tell You What You Can’t Do
Beacon StoriesNaheda, a brilliant scientist, has never let her visual impairment stop her from accomplishing her goals and encourages other students with disabilities not to be intimidated by difficult situations. Her story underscores how important it is to ask for help when needed to achieve success.
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Scientific Grants and Awards Programs
The Grants and Awards Programs of the Foundation Fighting Blindness support basic, laboratory-based early translational, clinical studies and pre-clinical research applicable to a broad range of retinal degenerative diseases.
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Advocacy Foundation News
Chairwoman Capito, Ranking Member Baldwin, and members of the Senate Appropriations Labor, Health and Human Services, Education, and Related Agencies Subcommittee, the Foundation Fighting Blindness appreciates the opportunity to provide written testimony to the subcommittee as an outside witness.
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To make a bigger impact on our mission to turn early research into clinical trials for people with IRDs and dry AMD, the Foundation will grow its network of collaborators and partners.
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The fiscal year 2025-2029 Science Strategic Plan is developed with a single, overarching goal: To drive research projects and activities to overcome barriers to translating preclinical research into clinical trials for individuals affected by inherited retinal diseases and dry AMD.
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FFB Funding More than $2 Million in New Research
Research NewsSeventy scientists submitted requests for funding.
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Inspired by Progress in Usher Syndrome Research
Research NewsMark Pennesi, M.D., Ph.D., a Foundation-funded clinical researcher at the Casey Eye Institute, discusses the first human study of gene therapy for Usher syndrome type 1B.
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Low Vision, High Hopes: My Journey with Stargardt Disease
Invisible DisabilityFor most of my life, I carried my vision loss quietly and invisibly. Vision is not only what we see. It is what we dare to believe is possible. And when that belief meets support, community, and opportunity — lives change.
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Built on Grit: Breaking Barriers to Employment
Beacon StoriesIn honor of National Disability Employment Awareness Month, we’re celebrating Mike Hess, founder of the Blind Institute of Technology (BIT). After years of being the “token blind guy” in the corporate world, Mike turned his experience into a movement for equity and opportunity—empowering blind, low vision, and disabled professionals with training, resources, and pathways to meaningful careers.
