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Seeing Through Your Disability
Beacon Stories30-year-old Lance Johnson is a video editor and podcaster living in Brooklyn, New York. Despite being diagnosed with retinitis pigmentosa (RP) at a young age, Lance has never let his RP change his drive and passion for creating.
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Statement from Ben Yerxa, PhD, about Paralympian Becca Meyers
Foundation NewsThe Foundation believes that all people with disabilities should receive the accommodations necessary for their inclusion in all facets of society, especially when an individual may be unfamiliar with the area.
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The Usher 1B Workshop is designed to bring together leading experts from academia and industry, to discuss openly, and in detail, what is known about Usher 1B disease pathology, disease models, clinical characteristics and therapeutic approaches.
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Nanoscope Therapeutics Launches Phase 2b Clinical Trial for Optogenetic Therapy
Research NewsWhile the trial is for people with RP, the company hopes it will also benefit people with other retinal degenerative diseases
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Beacon Stories
The faces behind RP Hope, Save Sight Now, and Sofia Sees Hope are all immensely dedicated to their nonprofit’s missions. The inspiration behind these organizations is similar, but their story and commitment are uniquely personal.
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BioBonds in New York Times: Ask Congress to Support Biomedical Research for Treatments and Cures
In the PressKaren Petrou invented a new funding model for curing blindness. Proposed legislation aims to apply it to medical research more generally.
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Fighting RP on the Foundation’s Frontline
Beacon StoriesMichelle Glaze, the Foundation’s associate director of professional outreach, shared her personal story of being diagnosed with retinitis pigmentosa (RP) in the film ‘Decoding disease.‘ In her own words, Michelle also describes her journey with genetic testing and the Foundation Fighting Blindness’ impact on her life.
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Research News
The company is planning a late-stage trial for its achromatopsia (CNGB3) gene therapy.
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Foundation News
This June 30th exclusive conversation and acoustic performance by Grammy-nominated rocker Grace Potter will raise awareness and funds to find treatments and cures for blinding diseases.
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Blind YouTuber Finding His Spot in Life
Beacon StoriesYouTuber Sam Seavey was diagnosed with Stargardt disease when he was just 11 years old. Sam didn’t fully accept his visual impairments until his early 30s. Now he’s helping others through “The Blind Life,” which is currently the most extensive resource for assistive technology on the internet.
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