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Displaying 31–40 of 1173 results
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Eye on the Cure Podcast | Episode 98: Jonathan & Josh Steinberg
Eye on the CureJosh Steinberg and his father, Jon, talk with host Ben Shaberman about their close-knit family’s journey with Josh’s vision loss.
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RD Fund Invests in Beacon Therapeutics to Advance XLRP Gene Therapy
Research NewsThe venture philanthropy arm of the Foundation partnered with other investors to support the development of a gene therapy trial for X-linked retinitis pigmentosa (XLRP).
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Recording Available: Insights Forum | Friday, December 12, 2025
Foundation NewsThe Foundation Fighting Blindness is pleased to provide a recording and full transcript of the Insights Forum, our quarterly conference call providing updates to the blinding diseases community. The call took place on December 12, 2025.
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Sight Enthusiast Alliance (SEA) by the Bay
The Bay Area Phorum provides a platform for professionals serving the blind and low vision community in San Francisco and surrounding areas to showcase services and other resources.
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Eye on the Cure Podcast | Episode 97: Lindsey Rambo
Eye on the CureA mom, wife, and a special education teaching assistant, Lindsey is the first participant in a groundbreaking gene therapy trial for Leber congenital amaurosis (LCA5).
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The Super-Sticky Shoes: Living With Retinitis Pigmentosa When the World Can’t See the Glue
Invisible DisabilityIn this deeply personal reflection, author Patti Brite Taylor shares what it feels like to live with retinitis pigmentosa—and how that experience inspired her mystery novel, The Vanishing Cactus, centered on a heroine with low vision.
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Beacon Therapeutics Launches Clinical Trial for Bilateral Administration of XLRP Gene Therapy
Research NewsThe company has also fully enrolled the Phase 2/3 VISTA clinical trial for its XLRP gene therapy.
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Excerpt from Never Seen the Stars by Kate Korsh
Invisible DisabilityRead an excerpt from the novel, Never Seen the Stars, where Hattie reflects on living with retinitis pigmentosa, navigating family dynamics, and finding hope in her choices.
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Beacon Stories
Runner, storyteller, and community builder — Eavan O’Neill turned her Stargardt disease diagnosis into a mission to connect and uplift others through her own lived experiences. Through Brightside, she’s redefining what it means to live boldly and authentically with vision loss.
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Eye on the Cure Podcast | Episode 96: Dr. Deniz Dalkara
Eye on the CureDr. Dalkara is a research director at INSERM in France and works on therapies for people with retinitis pigmentosa (RP).
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