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Recordings from the 2025 Stargardt's Summit
The Stargardt’s Summit, made possible with the support from Alkeus Pharmaceuticals, was hosted by the Foundation Fighting Blindness, Prevent Blindness, the Carroll Center for the Blind, and The Blind Life. This virtual summit enabled participants to learn about the newest Stargardt research, explore adaptive living resources, hear impactful patient stories, and connect with others going through similar journeys.
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Atsena Gets FDA Nod to Expand XLRS Gene Therapy Clinical Trial to Include Pivotal Phase 3 Cohort
Research NewsThe expanded Phase 1/2/3 shortens time to potential FDA approval.
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Legacy Donor Spotlight: Dr. Debora Elliott Ward
Beacon StoriesDr. Debora Elliott Ward, a clinical psychologist living with retinitis pigmentosa, shares her journey of resilience, professional success, and commitment to supporting the Foundation Fighting Blindness by naming it a beneficiary in her estate plans.
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The Reality of an Invisible Disability: A Storytelling Series
“The Reality of an Invisible Disability,” a new storytelling content series dedicated to amplifying the voices of individuals experiencing vision loss, at any spectrum. This series aims to shed light on the invisible experience that unifies all disabilities, providing a platform for sharing personal and raw experiences, and fostering a community of understanding and advocacy.
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A Mother’s Vision of a More Inclusive World
Beacon Stories WellnessThis Mother’s Day, we’re celebrating Krystle — a beacon of creativity, courage, and community. Legally blind mom Krystle Boateng couldn’t find children’s books she could comfortably read to her sons, so she created her own. Through her publishing company, Inside Ability Books, she’s redefining accessibility in children’s books and empowering individuals and families navigating vision loss and other disabilities.
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Atsena Receives $150 Million in New Financing to Advance XLRS and Preclinical Gene Therapy Programs
Research NewsThe company has reported encouraging results from its LCA1 and XLRS gene therapy clinical trials.
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Join us for upcoming events focused on emotional well-being, connection, and support for the blind and low vision community. Whether in-person or virtual, these gatherings offer a space to learn, share, and explore mental health topics together.
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Whether you’re supporting someone with vision loss or looking to deepen your own understanding, these resources — developed in collaboration with the blind and low vision community — are designed to help therapists provide thoughtful, informed care.
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This collection of articles and videos offering guidance, expert perspectives, and practical strategies to help individuals and families navigate the emotional landscape that often comes with a diagnosis.
