On Saturday, February 22, 2025, the Stargardt's Summit, made possible with the support of Alkeus Pharmaceuticals, was hosted by the Foundation Fighting Blindness, Prevent Blindness, the Carroll Center for the Blind, and The Blind Life. This virtual summit enabled participants to learn about the newest Stargardt research, explore adaptive living resources, hear impactful patient stories, and connect with others going through similar journeys.
The summit consisted of three panels:
- Pairs Panel – Ellen Gould, a double Emmy Award-winning writer and performer of solo musicals, moderated this session. Ellen, herself, has been legally blind since age fifteen from Stargardt. Pairs: Barbara Duffy and Paul Protentis; Bhavna and Ethan Tailor; Sarah and Lucia Danny.
- Research Panel – moderator – Dr. Michael Marciello. Panelists: Dr. Rachel Huckfeldt, Dr. Kenneth Fan, and Dr. Brittni Scruggs.
- Advocacy Panel – moderator – Sam Seavey. Panelists: Matt Philipenko, Jack Duffy-Protentis, and Stephanie Renberg
Special thanks to:
- Adam Chodak – MC
- Kenyetta McCurdy-Byrd – Keynote Speaker
- Charlie Collins – Closing Speaker
Below are the recordings from the summit.
