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Live Stream: Dry AMD-Patient Focused Drug Development
The purpose of this meeting is to share with key FDA officials and other stakeholders the journey of dry AMD patients and their caregivers across the lifespan, current unmet needs, prognosis, and current standards of care. We invite you, people living with dry AMD and caregivers, to participate in a live discussion with drug developers, researchers, and regulators, as well as healthcare policy makers and payors for purposes of informing clinical trial design and benefit-risk decision making for evaluating and approving treatments for this disease.
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The Foundation encourages individuals and teams from all scientific disciplines that have ideas geared toward eliminating inherited retinal degenerative diseases to apply to a grant or award program. Individuals from underrepresented racial, ethnic, and gender groups, as well as individuals with disabilities, are always encouraged to apply.
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Jan 5, 2024
Eye on the Cure Podcast | Episode 59: Dr. Robert MacLaren
Eye on the CureDr. Robert MacLaren, a world-renowned retinal surgeon, clinical trial investigator, and research lab leader at the University of Oxford, talks to host Ben Shaberman about the successes and challenges in retinal gene therapy development and clinical trials, as well as advances in robotics for improving retinal surgery outcomes.
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Dec 15, 2023
Eye on the Cure Podcast | Episode 58: Jason Comander
Eye on the CureJason Comander, Md, PhD, clinical researcher, surgeon, and director of the Inherited Retinal Disease Disorders Service at Mass Eye and Ear, talks to host Ben Shaberman about his administration of LUXTURNA gene therapy to RPE65 patients, his team’s re-analysis of vitamin A therapy for retinitis pigmentosa, and passion for retinal research and patient care.
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Dec 1, 2023
Eye on the Cure Podcast | Episode 57: James Rath
Eye on the CureJames Rath, a renowned filmmaker and accessibility consultant, talks to host Ben Shaberman about his vision loss journey and travel documentary, Blindspots. The new streaming program, on CuriosityStream.com, follows James as he explores the globe in search of accessible adventures, remarkable blind personalities, and great food.
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Nov 29, 2023
Foundation Fighting Blindness Appoints Jeff Klaas as Chief Strategy and Innovation Officer
Foundation NewsKlaas brings over twenty years of experience to lead strategies aimed at elevating engagement and revenue.
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Nov 10, 2023
Eye on the Cure Podcast | Episode 56: Michael Voevodsky, MBA, CEO
Eye on the CureMichael Voevodsky, MBA, CEO at MitoChem Therapeutics, talks to host Ben Shaberman about his company’s emerging, gene-agnostic treatment designed to boost mitochondrial function for preserving vision in people with retinitis pigmentosa, age-related macular degeneration, and other retinal conditions.
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Oct 31, 2023
Foundation Fighting Blindness Named Beneficiary for iDox Concert
Foundation NewsSpecial event being held during American Academy of Ophthalmology annual conference in San Francisco, California
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Oct 25, 2023
Foundation Fighting Blindness and Eone Announce Partnership
Foundation NewsTogether, the Foundation Fighting Blindness and Eone are launching a new limited-edition tactile timepiece watch, the ChangeMaker.
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Oct 13, 2023
Eye on the Cure Podcast | Episode 55: Omar Mahroo, MB, PhD
Eye on the CureOmar Mahroo, MB, PhD, talks with host Ben Shaberman about electrophysiological testing for the retina, namely the electroretinogram (ERG), and its important role in evaluating and diagnosing inherited retinal diseases. Dr. Mahroo is a consultant ophthalmologist and retinal specialist at Moorfields Eye Hospital and St. Thomas’ Hospital in London, and Professor of Retinal Neuroscience at University College London.