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In the Press
Four-year cohort will enroll participants with inherited retinal diseases caused by mutations in the RHO gene. Study is intended to deepen understanding of disease progression and inform future clinical trial design in rhodopsin-associated retinal disease.
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MeiraGTx Acquires XLRP Gene Therapy Bota-Vec, Moves Toward Regulatory Filing
Research NewsMeiraGTx has acquired bota-vec, a gene therapy for X-linked retinitis pigmentosa (XLRP), and plans to file for regulatory approval in the U.S., Europe, and Japan, with a potential launch in 2027.
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Age-Related Macular Degeneration Research Advances
Research NewsRecent developments in research on age-related macular degeneration.
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Foundation Fighting Blindness Appoints Jason Morris as Board Chair
Foundation NewsLongtime Board member, parent advocate, and business executive slated to guide next phase of the organization’s growth and mission, effective immediately.
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Answers at Last: How Genetic Testing Revealed Zach’s Bardet-Biedl Syndrome
Beacon StoriesFor years, Zach Lovell lived with vision loss that didn’t have a complete explanation. Genetic testing through the Foundation’s My Retina Tracker® Program revealed he had Bardet-Biedl syndrome (BBS), finally connecting decades of health challenges and bringing long-awaited clarity to him and his family. Today, Zach is looking ahead with purpose — supporting research through the Foundation, planning for his future, and encouraging others to do the same.
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Foundation Fighting Blindness Provides Public Access to Data From its RUSH2A Natural History Study
Foundation NewsRUSH2A has captured extensive data over four years from patients with USH2A mutations causing non-syndromic retinitis pigmentosa and Usher syndrome type 2A.
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Vision Science Explained Through Animated Videos
This educational series aims to educate and inform viewers by simplifying science – helping people understand topics like blinding diseases, genetics, and clinical trials, without requiring advanced background knowledge.
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Annual Funded Grants – CRISPR and Prime Editing Technologies
Research NewsFunded grants for CRISPR and prime editing approaches.
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Built on Grit: Breaking Barriers to Employment
Beacon StoriesIn honor of National Disability Employment Awareness Month, we’re celebrating Mike Hess, founder of the Blind Institute of Technology (BIT). After years of being the “token blind guy” in the corporate world, Mike turned his experience into a movement for equity and opportunity—empowering blind, low vision, and disabled professionals with training, resources, and pathways to meaningful careers.
