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Foundation News
ARPA-H award establishes multi-disciplinary consortium of industry experts to address current limitations and advance innovative technologies for vision-restoring whole eye transplantation.
Goal to bring light to those who are blind through first-ever successful vision recovery in six whole eye transplants in humans by 2030.
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This year, #GivingTuesday is December 3, 2024, and you can double your impact, fueling breakthroughs in blinding disease research!
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About Page
The Foundation’s National Trustees are leadership-level volunteers who support the Foundation’s fundraising, organizational development, and volunteer recruitment efforts.
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Eye on the Cure Podcast | Episode 76: The Lemay-Pelletier Family
Eye on the CureWhen the Lemay-Pelletier family from Montreal learned that three of their four children were losing vision from retinitis pigmentosa, they made the bold decision to spend 15 months traveling the world to give their kids as many visual memories as possible.
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Celebrating Genetic Counselor Awareness Day with Kristy Lee
Beacon StoriesOn Genetic Counselor Awareness Day, we celebrate the invaluable contributions of genetic counselors, whose dedication guides individuals through the complexities of genetic information, offering support, and fostering hope. We’re highlighting Kristy Lee, MS, CGC, whose work brings clarity for countless patients and families navigating genetic diseases.
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Research News
Strengthening research in retinal disease with record-breaking $19.8 million investment in innovative projects targeting vision loss worldwide.
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Atsena’s LCA1 Gene Therapy Licensed by Nippon Shinyaku for Markets in US and Japan
Research NewsThe companies are planning a Phase 3 clinical trial for the promising gene therapy.
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Disease
Mutations in CRB1 are a relatively common cause of several inherited retinal degenerations, including: Leber congenital amaurosis (LCA) retinitis pigmentosa (RP), and macular dystrophy (MD).
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Funded Foundation Fighting Blindness Grants and Awards for Fiscal Year 2024 (July 1, 2023 – June 30, 2024)
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BlueRock’s Photoreceptor Cell Therapy to Move into Clinical Trial
Research NewsThe Foundation funded Dr. David Gamm for development of the induced pluripotent stem cell approach to be used in the trial.
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