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Recording Available: Insights Forum | Thursday, March 26, 2026
Foundation NewsThe Foundation Fighting Blindness is pleased to provide a recording and full transcript of the Insights Forum, our quarterly conference call providing updates to the blinding diseases community. The call took place on March 26, 2026.
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A Legacy of Strength, Adaptability, and Generosity: Richard and Elizabeth Kamis
Beacon StoriesRichard and Elizabeth built a life rooted in resilience, service, and generosity, with Richard’s experience living with retinitis pigmentosa shaping their shared purpose. From breaking barriers in education to helping others, their impact continues to help advance research for generations to come.
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VeonGen Reports Promising Clinical Progress for Stargardt Disease Gene Therapy
Research NewsVG801 shows sustained vision improvements through 12 months with favorable safety profile
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Sumitomo Pharma Receives FDA Orphan Drug Designation for Retinitis Pigmentosa Treatment
Research NewsPotential cell therapy, DSP-3077, gains special regulatory status to support development for inherited retinal disease.
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Foundation News
A new partnership with A Race Against Blindness brings a spring 2026 luxury vehicle fundraiser to support people living with RP and Bardet-Biedl syndrome.
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From Hiding to Helping: How Cory Turned Vision Loss Into a Life With No Limits
Beacon StoriesAfter years of hiding his vision loss, Cory Rainford now uses his voice to help others navigate life with choroideremia. As his blinding disease progressed, he worked hard to keep it invisible, even leaving his dream job. Today, through his YouTube channel Legally Blind No Limits, Cory shares honest, humorous videos about adapting and finding community, showing others that life with vision loss can still be full of possibilities.
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Foundation Fighting Blindness Appoints Jason Morris as Board Chair
Foundation NewsLongtime Board member, parent advocate, and business executive slated to guide next phase of the organization’s growth and mission, effective immediately.
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Octant Bio Begins Clinical Testing Oral Treatment for Rhodopsin-Related Retinitis Pigmentosa
Research NewsFirst-of-its-kind small molecule therapy targets protein misfolding at the root of RHO-adRP
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How to Know if a Therapist is Right For You
WellnessWhen you consider starting a therapeutic relationship with a new provider, pay attention to whether you are able to develop a sense of trust, safety, and collaboration with your therapist first and foremost.
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Low Vision, High Hopes: My Journey with Stargardt Disease
Invisible DisabilityFor most of my life, I carried my vision loss quietly and invisibly. Vision is not only what we see. It is what we dare to believe is possible. And when that belief meets support, community, and opportunity — lives change.
